The Yuckage...Though a positive attitude is best in most, if not all matters, unfortunately, I'm constantly reminded of the cons of living with MS. I refer to those cons as the...Reactions0reactionsComments1 comments
Tremors...I am the primary caregiver for my fiancee, who has advanced SPMS. She is also recovering from multiple stage 4 bedsores. The wound care has pushed the MS care to...Reactions0reactionsComments3 repliesSymptoms
We're gonna need a bigger boat!...I met my fiancé in 1998. She told me right away that she had MS. I had no idea what that meant but she seemed perfectly healthy and we hit...Reactions0reactionsComments0 comments
Today's Rant...I can be the grouchiest, snidest, meanest, most outspoken, most outgoing, most self-confident and most arrogant person that you have or will ever meet……. while I’m sitting on my ass...Reactions0reactionsComments1 comments
It isn't always MS...Hi all - I was diagnosed with MS in 2008, after living with it for easily ten years before diagnosis. I assumed I was out of shape when my legs...Reactions0reactionsComments2 comments
Stress and MS...Upon my diagnosis in 2004, my mom couldn't handle it. We quit talking for 7 years. We started talking again back in September 2015 due to the death of my...Reactions0reactionsComments0 comments
The Person I Once Was...By Michelle Barton I keep reading articles about things people need to know about multiple sclerosis or how to treat people with chronic diseases. What needs to be written is...Reactions0reactionsComments1 comments
A Little Slip, A Big Fall...And at times, I do not pay attention. Perhaps I am distracted, daydreaming, a little more tired at the end of the day or I have the slightest fever, which...Reactions0reactionsComments0 comments
Gastroparesis...I have been diagnosed with gastroparesis, and when I asked my MS specialist about it being an MS symptom, he told me it was not. However, when I asked my...Reactions0reactionsComments0 repliesSymptoms
When Awareness isn't "Awareness"...Have you ever nodded your head to make someone think you're following what their saying but really have no clue? You probably don't even care what they're talking about. I...Reactions0reactionsComments0 comments
Comminicating Symptoms to your Doctors (and the resulting frustrations)...I had a very disturbing visit with my (old) Neurologist yesterday. I was recently referred to a different Neuro doc because my first was SO hard to see for follow-ups...Reactions0reactionsComments2 repliesHealthcare Team
No Empathy...I'm constantly disgusted and fed up that people just don't understand our MS. I have given up talking about it and complaining. People come to me with their problems or...Reactions0reactionsComments7 repliesCommunity Resources
Backward’s forward, “Papa off,” Sandra Bullock, and me...I have the power wheelchair. Jose, the technician, delivered it and showed me its impressive range of functions. Wendy, my beloved physical therapist, was very encouraging and worked with me...Reactions0reactionsComments0 comments
MS Diagnosis: What a relief!...I'm sure some of you have experienced a sense of relief when you finally got your diagnosis. But my relief goes beyond that - I'm genuinely thankful. How crazy does...Reactions0reactionsComments3 comments
Bug Stomping; the Journies of Two...Be watching on Amazon this summer. There will be a new book in the Kindle section and it will be free. We ask that if you like it, you don't...Reactions0reactionsComments0 repliesCommunity Resources
Stephen Hawking, black holes, wheelchairs, and me…...So tomorrow I’m getting a new power chair and I was joking then I have to get myself a Stephen Hawking voice to go with it. And of course Sheila...Reactions0reactionsComments0 comments
The Ultimate Pickup Line: "I Have MS"...“Yum! This pizza is delicious! Oh, by the way, I have multiple sclerosis. Can you pass the Parmesan cheese?” “I had a lot of fun tonight, thanks for taking me...Reactions0reactionsComments20 comments
Monsters Are Real...I have a 4 year old son who is having trouble sleeping at night because he is going through that phase where he's afraid of the dark and the monsters...Reactions0reactionsComments0 comments
Terrified of Tysabri......Tomorrow's my first Tysabri infusion and I am scared to death. I tested positive for JC Virus but apparently the cutoff is 1.0 and I'm at 0.77. I really, really...Reactions0reactionsComments4 repliesTreatment
They say a change is as good as a rest. Me I'd like a rest from all the changes....I'm 45 and was diagnosed with PPMS (only) a year ago. Looking back, hindsight being a wonderful thing, the signs have been there for probably 10 years or more but...Reactions0reactionsComments0 comments
