Anxious about neurology appt next week ...Hi everyone, Thank you in advance for reading this - I saw my primary care doc last month for symptoms and have been referred to a neurologist, who I'm seeing...reactions4repliesCopingUndiagnosed/Seeking Diagnosis
Faulty Medtronic Pump...I've had 4 pumps over the last 16 years. The 1st one at one point in time had something happen & it changed from it's set flow to a full...reactions2repliesPain
Career Ending...I was in healthcare, and although I'd heard of MS, I was not at all familiar with it. For me I had fainted at first, but never did learn the...reactionscomments
Life After Disability...Being diagnosed with multiple sclerosis in my early 20’s was an unexpected shock. Getting diagnosed with an incurable disease at any age is a life-changing event. As surprising and terrifying...reactions18comments
Life and Challenges with MS...Living with Multiple Sclerosis is every day, month and year. When I was told that I had M.S. in 2007, I thought the world was going to crumble down on...reactions7comments
Community Spotlight: A Glimpse Into Martin's MS Journey...Martin, a valued member of our MultipleSclerosis.net community, graciously agreed to spend some time chatting with us about his life with MS. We covered a lot of different topics during...reactions1comment
What The MS?!!!!!...About 6 months after having my one and only child, I started to notice that I really was not myself. I forgot people’s names, mixed up words in sentences while...reactionscomments
If I Knew Then What I Know Now......I would have prioritized my self-advocacy over self-doubt. I would have trusted my body to tell me what it needed rather than forcing a uniform lifestyle on it based on...reactions1comment
Doing My Best for a Living...When meeting someone for the first time or seeing someone after many years, it's natural to ask questions to become acquainted or reacquainted. Areas of interest may revolve around family...reactions20comments
From Bad to Worse...I was diagnosed with Crohn's disease in 1974. I got the worst kind right off the bat. Fistula, the whole shebang. I was 17. Fast forward to 2009 and several...reactionscomments
No Way...I was diagnosed in 2018 after a vague tingling in my right foot was getting a bit scary (and annoying). I was 57 at the time, a bit on the...reactionscomments
The Good Stuff...There are days when I'll suddenly stop and realize how good I truly feel. I may be exhausted to the core, and I know I need to rest, but I...reactions5comments
a lot of symptoms with no diagnosis...about 20 years ago i developed optic neuritis and was given an MRI but no lesions were found. Since then i have neuritis 2 more times and continue to be...reactions2repliesUndiagnosed/Seeking Diagnosis
My Husband's Journey with MS...My husband, in his mid-thirties, started getting very fatigued after mowing the lawn. We had moved from Iowa to Florida for his new job as assistant director of a library...reactionscomments
MS and Cog Fog...What Was I Thinking About?...I am sure most, if not all, of us have enjoyed that moment of “what was I going to do?" or "what was I thinking?” That puzzled look, scratching your...reactions28comments
The Mystery of Missing My Medication...A few days ago, I was sitting around my house and realized that I wasn’t feeling quite right. My head felt fuzzy and I was markedly more tired than I...reactions68comments
Does Medicare pay for Ocrevus?...Does medicare pay for Ocrevus? Is it difficult to get medicare to approve Ocrevus? I have been stable on Ocrevus for 3yrs now. I am trying to get SSDI to...reactions1replyCostInsurance & DisabilityDepression
Can you get SSDI taken away if approved?...I am battling getting SSDI…. And i just saw another post that someone got their SSDI taken away after being on it for 3yrs…. Is this even possible? This is...reactions8repliesDepressionInsurance & DisabilityCost
How do people with MS who need financial help but dont qualify for it actually make it?!?! I am drowning in medical debt and rising insurance costs… ...I am terrified of my future with MS…. Everything keeps going up…. I need financial help but i dont fit any “box”…. The MS society has no money to help...reactions5repliesCaregivingCostDepression
SSDI taken away!?...My daughter was approved for SSDI in 2019. She just had her 3-year review, and they took away her benefits! She is disabled not only by MS but serious mental...reactions10repliesInsurance & Disability
