MS Book Review: The Multiple Sclerosis Toolbox...How many of us have looked for some sort of manual, guide, or workbook for dealing with the day-to-day uncertainties of MS following diagnosis? I know I sure did. If...Reactions0reactionsComments6 comments
How long does diagnosis take?...My daughter was diagnosed at around age 32. I am 61 and a recent abnormal brain MRI and multiple symptoms is indicating that I may have MS, also. I see...Reactions0reactionsComments5 repliesUndiagnosed/Seeking Diagnosis
Summer tip...If anyone reading this has one of the newer LG Air conditioners that doesn't drip water and recycles it by evaporating it on the warm/hot parts, if one day it...Reactions0reactionsComments2 repliesAssistive DevicesTips & Advice
Looking at an InterStim...Hi Community - I am new here, but would really like to hear from folks who have had an InterStim placed? I have gone through ALL the options in the...Reactions0reactionsComments3 repliesAssistive DevicesTips & AdviceTreatment
The High Cost of Medication In My Life...Three weeks ago, I had a non-damaging (ND) flare (I dislike the term ‘pseudo’). My feet and legs began to go numb at the same time my scalp was tingling...Reactions0reactionsComments8 comments
If I Knew Then What I Know Now - Neurologist Visit Considerations...It’s true and I know a good majority of you have thought the same thing. If we only knew then, what we know now, we would have acted sooner rather...Reactions0reactionsComments18 comments
Symptoms...Hi Everyone, I’ve been having weird symptoms for about 10 weeks now. It started off with burning pain in the midback, followed by Lhermitte’s which lasted over a month. Lhermitte’s...Reactions0reactionsComments3 repliesUndiagnosed/Seeking DiagnosisSymptomsMRIs
Numb Little Bug...I've always loved music. I enjoy music and songs of almost every genre. Listening to music has always been a great source of comfort. It's something I enjoy doing, whatever...Reactions0reactionsComments4 comments
Likely MS but just weird...Hello, I have been having problems off and on for years and I think I have MS. I had a really big flare up of whatever is going on and...Reactions0reactionsComments12 repliesUndiagnosed/Seeking Diagnosis
Watch MSAA’s “Keys to Adapting Your Environment” Webinar On-Demand...“The key to success is often the ability to adapt.” – Confucius Adapt. Modify. Change your perspective. The MS community has no shortage of adaptations needed to get through a...Reactions0reactionsComments0 comments
How do you keep cool?...For many of us, it's that time of year again! The season when the temperature and humidity increase to unbearable levels. Many of us with Multiple Sclerosis experience a temporary...Reactions0reactionsComments87 repliesWeather
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
MS or fibromyalgia?...Hi everyone, I’m in the middle of trying to get a diagnosis for what’s been going on with me the past few months. My dr has been hopeless, thinks it...Reactions0reactionsComments1 repliesUndiagnosed/Seeking Diagnosis
Doubt and Suspicion Are Painful...So many times in the community, our members express anger and dismay when loved ones or friends do not understand how this disease affects their bodies. Feeling accused of what...Reactions0reactionsComments10 comments
Eye pain or migraine ...Hello there! I am new to this forum, but diagnosed in 2020 with RRMS. Since then I’ve been on a couple different medications (copaxone, now rebif). However I am still...Reactions0reactionsComments2 repliesTips & AdviceSymptoms
Don’t Let Heat Beat You...The recent escalation of temperatures in my home state made me immediately think of the dog days of summer even though it was only May. If there were kryptonite capable of...Reactions0reactionsComments13 comments
HSCT Part 3: Planning for Caregiving and Health Considerations...The next step after planning for treatment location and fundraising is, who will/can go with you? Questions that you need to ask yourself are: can this person handle the tough or...Reactions0reactionsComments2 comments
Doors Opening...My MS journey, and I witness and see for many, is a narrative about doors closing. Having to leave my job because I wasn't able to cope, and stopping aerobic...Reactions0reactionsComments4 comments
MS Through My Daughter's Eyes...Through the eyes of Emma Having a parent with Multiple Sclerosis doesn’t just affect them. It affects everyone who loves them, especially their children. My mom showed me that no...Reactions0reactionsComments4 comments
I Hold the Power to Heal in My Hands...For the past five years, I have dealt with debilitating full-body pain due to the damage to my brain and spine caused by multiple sclerosis (MS). Chronic pain was something...Reactions0reactionsComments4 comments
