Aging with MS

Hi Pvann! You bring up a very good point. It can be quite hard to discern what is an age-related issue and what is an MS symptom. Especially as one ages. I think it was wise for you to get testing ten years ago, as you now have a baseline for your cognitive function to compare against, should you get testing done in the future. I sincerely hope you NEVER deal with dementia or Alzheimer's, although I understand that cognitive issues ("cog fog" as it is sometimes called) are no fun! In addition to any community feedback you may receive, I thought you might like this article on the topic of aging and MS -- https://multiplesclerosis.net/living-with-ms/aging/. I know that two of our contributors, Kim Dolce https://multiplesclerosis.net/community/experts/kim-dolce/ and Laura Kolaczkowsi https://multiplesclerosis.net/community/experts/laura-kolaczkowski/, write about aging and MS from time to time. I hope this information helps! Thank you for being a part of the community. Have a good evening! Best, Erin, MultipleSclerosis.net Team Member.

Interesting indeed. My biggest problem in the last couple of years has been cognitive. I fall into the “but you look so good” MS category, no visual disabilities, although I have a handicap pass (thankfully so I don’t have a huge parking lot in which to lose my car!), and am disabled according to the federal government.
I have found that in the last 5 years since I have had my daughter I regularly get fellow mothers just attributing my “forgetfulness” to “baby brain.” While that may have worked for the first 2-3 years post-childbirth, I think people will have to reason an “excuse” for me in their minds in some other fashion.
Still too young for one to believe I have dementia or Alzheimer’s disease (only 41 years old), but you never know. I, however, like you, have my trusty neuropsych report to substantiate my cognitive disability and to serve as a benchmark moving forward.
I now exercise regularly and hope to hold (or better yet, reverse) my cognitive abilities in place.
Another interesting point discussed with my husband and my neurologist is to question whether my DMT is really preventing the cognitive issue. If I had physical problems arise, then it would be easier to say switch my DMT and try something new, but with cognitive issues, it is harder to pinpoint — even on one’s MRI.

I am 76 and have been aware of my MS for 19 years. The cognitive part is hard to cope with. I was always the one that scheduled every family affair, stayed up on financial and now I don't have those traits anymore, I have MS. MS takes your short term memory and you can't get it back. I have a good support family and I have dealt with the cognitive by telling each of my children to e-mail me all dates of anything they plan to do or I need to know. That way, I instantly write it on my desk calendar and I check that each day. You learn to cope because MS takes away you.