Does having MS make it difficult to manage "simple" errands?
How does your MS affect managing and running "simple" errands?
Do you experience sensory overload from stores?
Have you found that they might not be ADA compliant?
Maybe running errands is just straight-up exhausting for some.
Do you have to plan ahead?
How do you handle it?
We want to know. Share here.
I have MS 5 years now ,and this my hardest year,I can’t think quickly ,I can’t take decisions ,I can’t solve any problems,I forget a lot
, I am sorry your MS has been really rough on you this year! Please know you are not alone in this! I do hope you notice a decrease in some of your more challenging symptoms. Gentle Hugs, Erin, MultipleSclerosis.net Team Member. It's the same for me too.
Hi, I’ve had MS for 29 years. Sensory overload has been a BIG problem for the last several years but it has gotten worse in the last year. It’s the loud sounds that effect me most of all. Especially if there is multiple sources of sound. My husband can have the tv on and looking at videos on his tablet at the same time and I have to leave the room. Plus, did I mention he is hard of hearing so the volume is up on everything. When I need t peace and quiet I go to the bedroom and read or take the dogs for a walk. YES! Teen lad & hubby both have their phones in hand, doing/listening to something, while the TV is on at a volume that seems unnecessary to me. Then they come into the kitchen and start trying to get my attention and show me something while I'm trying to follow a recipe. NO, just NO! I can't multitask like that anymore. I'm not trying to snub you, my beloved dudes, and I'm sure your cute dog video/comment on politics/request for food or form signing is hilarious/ important, you name it... but being forced to change gears when I'm in the middle of something makes me want to scream, cry or both 🤯. Sigh 😕. Then I just hope they don't pout, and I DO get to see that dog video LATER. , I understand this! I swear that teens love to communicate and connect with parents via social media and cool videos they have found. Which is great, but it can be a bit overwhelming when you're already trying to focus on something and dealing with a lot of sensory input! Best, Erin, MultipleSclerosis.net Team Member.
Hello again. I’m not going into my rant about places not being ADA compliant. I’ve discovered there is a difference in ADA compliance and wheelchair accessible when it comes to bathroom stalls, doors that are hard to open, and soap and paper towel not in reach.
That is so true,
. It was quite frustrating for my father when he was in a wheelchair. We once went into a handicapped accessible bathroom with a huge stall in which the door wouldn't open all the way. Not very accessible if you can't get a wheelchair through it. - Lori (Team Member)
It has become increasingly difficult to get out and do simple errands. The noise, too many people, bad days with a lot of pain, being off-balance, eye problems, feeling forgetful. I rarely go out anymore, only when absolutely necessary and I'm usually exhausted by the time I get back home.
For me, MS diagosis in 1982 wasn't bad when I was young but now, has changed my life, and not for the better.I do have support. My husband is my driver, wheelchair pusher, grocery shopper, chef, dish washer, and will purchase anything I need. He does almost everything I used to do, and still works full time. Must give him an appreciation for what I did, with 2 children, a dog and a near full time job. When the pandemic settles down I would like to get a cleaner in once or twice/week. That's wonderful,
. I am glad your husband is so supportive and I am sure he is gaining a huge appreciation for all that you did. I hope you are able to hire someone to clean eventually. You two deserve it. Thinking of you. - Lori (Team Member)
