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How to Describe MS

How would you describe MS to someone who has no idea what MS is?

  1. It is a Devil disease. It attacks your strength, balance, memory, basic human functions. There is no cure. Some drugs help with the symptoms, always with some sacrifices.

    1. Well put, @mtoddh. I hope we see a cure or better medications for management in this lifetime. Wishing you the very best! - Lori (Team Member)

  2. I tell everyone who asks that MS means that my immune system has identified my nervous system as a disease or an injury, so it thinks that it's helping me by fighting against it. Unfortunately, my nervous system was unprepared for the battle. 😉

    1. This is a really good way to describe MS Lia. An internal battle. How have you been doing lately?? 🧡 Kayleigh, MultipleSclerosis.net team

  3. I'm doing pretty well. I just started Kesimpta, so I'm waiting to see how that goes. I figure that as long as I keep my spirits high and refuse to give up, I'll be doing okay. 😀

    1. what is Kesimpta? Injection?

    2. , hi! Kesimpta is an injectable medication. You can read more about it here -- https://multiplesclerosis.net/treatment/kesimpta. Best, Erin, MultipleSclerosis.net Team Member.

  4. After describing the myelin sheath stuff, I would say that there are as many different appearances to this disease as there are people who have it. Because you know someone with MS who runs marathons doesn't mean we all can. Also, just because you know someone who has MS and is in a wheelchair that we all will be. I would say, please listen to what is going on with me and don't try to fix it. Just listen. This disease is sneaky.

    1. This is such great advice and so so true! MS presents so wildly different in everyone. Listening is key. Thank you for sharing this with all of us! 🧡 Kayleigh, MultipleSclerosis.net team

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