How would you describe MS to someone who has no idea what MS is?
It is a Devil disease. It attacks your strength, balance, memory, basic human functions. There is no cure. Some drugs help with the symptoms, always with some sacrifices.
Ali.K, I get Ocrevus every 6 months. Ocrevus can only possibly slow down or even stop the progression. It does not fix anything. Does it work? How would anyone know?
I tell everyone who asks that MS means that my immune system has identified my nervous system as a disease or an injury, so it thinks that it's helping me by fighting against it. Unfortunately, my nervous system was unprepared for the battle. 😉
This is a really good way to describe MS Lia. An internal battle. How have you been doing lately?? 🧡 Kayleigh, MultipleSclerosis.net team
I'm doing pretty well. I just started Kesimpta, so I'm waiting to see how that goes. I figure that as long as I keep my spirits high and refuse to give up, I'll be doing okay. 😀
Been on Kesimpta for 6 months now. Works the same as Ocrevus, no better, no worse. It is just more convenient. You really don't know if it it doing anything. You just have to take it. You have no options.
After describing the myelin sheath stuff, I would say that there are as many different appearances to this disease as there are people who have it. Because you know someone with MS who runs marathons doesn't mean we all can. Also, just because you know someone who has MS and is in a wheelchair that we all will be. I would say, please listen to what is going on with me and don't try to fix it. Just listen. This disease is sneaky.
This is such great advice and so so true! MS presents so wildly different in everyone. Listening is key. Thank you for sharing this with all of us! 🧡 Kayleigh, MultipleSclerosis.net team