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PPMS

Is anyone out there diagnosed and living with PPMS or is it just me?

  1. I have PPMS. You are not alone.

    1. I understand Lori. Thank you.

    2. pretty much what Lori said. Me referring to my PPMS is my attempt to reduce the risk of becoming swallowed up in the awfulness of a non-curable, debilitating disease. If I say it's ridiculous it takes some of the sting out of it and I can roll my eyes as I roll with the punches.

  2. Hi . We have lots of people who have PPMS in this community, including some of our advocates. It is less common than RRMS, but we have been work to improving our PPMS content. Here are some stories that you might find interesting and that might help you find others here, like , who share your diagnosis: https://multiplesclerosis.net/search?s=PPMS. If ever you think of a topic you would like us to explore, just send a message to me or any other moderator and we will pass the idea on to our site managers. I hope this helps. Wishing you the best! - Lori (Team Member)

    1. I have ppms as well. I was finally diagnosed 25 years ago after living with all the symptoms since high school. I am now 75. The symptoms were always there, but as I got older they did not come and go. They came and stayed and worsened as I got older. Take heart, you are not alone.

      1. Thank you Judy!!! I was only diagnosed 5 years ago and I've had symptoms since HS as well (we think). I'm 55. No come and go, just here to stay now.

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