First infusion. Got my first Ocrevus infusion on Tuesday. Can someone walk me through all what will happen? My nerves are starting to get to me. Thanks....reactions3repliesTreatment
What is your experience with steroids? Sometimes, steroids work for a person, and sometimes they don’t. And of course, all people react to a drug differently—both in response to the effectiveness and to the side effects...reactions18repliesTreatmentSide Effects
Clene Nanomedicine - CNM-Au8 REPAIR-MS Expanded Access Protocol - Treatment updateClene Nanomedicine - CNM-Au8 Expanded Access Protocol - Treatment update 2.5 years ago, I was in the Clene REPAIR-MS trial at the University of Texas Southwestern. I wrote about my...reactions1replyResearch & Clinical TrialsTreatment
How long do you stay on your DMT?I'm looking for some advice, experience, or just some regular conversation about the length of time you would/should stay on the same DMT. I'm a 52 year old female that...reactions4repliesTreatment
Any relief?I figured I would ask. I have not been formally diagnosed but I have a appointment this morning with my neurologist to review my MRI. I was able to get...reactions2repliesUndiagnosed/Seeking DiagnosisPainTreatment
Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update - Restarted treatmentHello. Below is an update since my last posting on July 13, 2022. https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-end-of-treatment-finally-concluded Just started taking the Clene Nanomedicine CNM-Au8 therapy again as part of a new Expanded Access...reactions1replyResearch & Clinical TrialsTreatment
Has anyone tried functional electrical stimulation (FES)?My legs are getting more spastic. I read that Functional Electrical Stimulation can help. FES uses low level electrical impulses to stimulate the peroneal nerve, which activates the muscles responsible...reactions8repliesTreatment
Wheelchair cushionI have MS and wheelchair bound but able to transfer… I need a new wheelchair cushion for my wheelchair one that helps prevent pressure sores from sitting for long periods...reactions4repliesAssistive DevicesTreatmentTips & Advice
Has anyone tried Botox to reduce spasticity?I am having increasing spasticity in my legs. My foot drop and foot slap are getting worse, which is a tripping/falling hazard. I read that Botox injections can help. These...reactions3repliesTreatment
To Depend or not to DependI recently got a new urologist who change my life. She told me that she could do a procedure that would last 6 months and will help quell chronic leakage...reactions1replyTreatment