caret icon Back to all discussions

Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update - Restarted treatment

Hello. Below is an update since my last posting on July 13, 2022. https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-end-of-treatment-finally-concluded

Just started taking the Clene Nanomedicine CNM-Au8 therapy again as part of a new Expanded Access Program at UTSW. Looking forward to long term access and MS symptom improvements! I was in the REPAIR-MS clinical trial in the Spring of 2022. While some symptom improvements were retained after the being in the trial, several worsened - mostly foot drop, balance, and numbness issues. These issues are probably related to a severe accident in 2023 that resulted in surgery and temporary discontinuation of the DMT I was on.
I believe consistent pain and lack of rest over a few months will exacerbate/worsen MS symptoms! I'm better now and hope the CNM-Au8 will get me back on track - as it did before.

I'll post any CNM-Au8 effects while I'm in the trial EAP.

  1. It's so awesome to see an update from you, ! I really appreciate getting a bit of an inside glimpse into this trial.

    I am sorry you saw a return/worsening of some MS symptoms. And I am so sorry to read about your accident! I hope you are fully recovered from that incident.

    I look forward to reading more updates from you in the future!

    Best, Erin, Team Member.

    Please read our rules before posting.