Any relief?
I figured I would ask. I have not been formally diagnosed but I have a appointment this morning with my neurologist to review my MRI. I was able to get a copy of my MRI before my meeting. I have some lesions on the corpus callosum. I have experience dizziness and crazy fatigue. I have disabling pain, and I have am struggling to find ways to continue going as the doctors have not been entirely supportive. I feel like my primary care thinks I am making it all up.
I'm sorry to hear that you're struggling with these symptoms and in getting an accurate diagnosis or feeling understood. It's unfortunately not uncommon to have this experience as you're living with a chronic condition/symptoms. You've done the very best thing by reaching out to a doctor and getting the appropriate testing done. If it feels like this doctor isn't the best fit for you, you can always look for a second opinion but having a doctor to direct your care is so important.
I don't know if you'll have time to read these before your appointment, but here are some discussions we've had here about prepping for a doctor's appointment and establishing good communications with your doctor.
https://multiplesclerosis.net/living-with-ms/preparing-for-your-neurologist-appointment
https://multiplesclerosis.net/living-with-ms/tips-patient-doctor-communicationI hope they help. Keep us posted on how it goes, if you feel comfortable doing so.
Best
Alene, ModeratorHi,
!
How did your appointment go? Did you get some answers? I do hope you have a firm diagnosis and that you and your doctor have come up with a game plan as to how to proceed from here.
Please let us know how things are going, only if you feel like doing so.
Best, Erin, Team Member.I know I left this unchecked. I had some other problems. I had to have a 3 level neck fusion and still had some neurological issues. They wanted to wait till after I had my surgery to move forward with any diagnosis. I officially got the diagnosis today. I do feel better after my neck surgery. My mri with contrast shows there isn’t anything currently active but I still fill off.
, it's great to see an update from you! I am glad the neck surgery was successful and that you are feeling better in that regard. I hope your recovery from the surgery went smoothly. And, I am sorry you are now dealing with the official diagnosis, but I think you knew it was coming. Still, please don't hesitate to reach out if you have any questions. We're happy to help in any way we can.
Thanks for the update!
Best, Erin, Team Member.
