Any relief?
I figured I would ask. I have not been formally diagnosed but I have a appointment this morning with my neurologist to review my MRI. I was able to get a copy of my MRI before my meeting. I have some lesions on the corpus callosum. I have experience dizziness and crazy fatigue. I have disabling pain, and I have am struggling to find ways to continue going as the doctors have not been entirely supportive. I feel like my primary care thinks I am making it all up.
I'm sorry to hear that you're struggling with these symptoms and in getting an accurate diagnosis or feeling understood. It's unfortunately not uncommon to have this experience as you're living with a chronic condition/symptoms. You've done the very best thing by reaching out to a doctor and getting the appropriate testing done. If it feels like this doctor isn't the best fit for you, you can always look for a second opinion but having a doctor to direct your care is so important.
I don't know if you'll have time to read these before your appointment, but here are some discussions we've had here about prepping for a doctor's appointment and establishing good communications with your doctor.
https://multiplesclerosis.net/living-with-ms/preparing-for-your-neurologist-appointment
https://multiplesclerosis.net/living-with-ms/tips-patient-doctor-communicationI hope they help. Keep us posted on how it goes, if you feel comfortable doing so.
Best
Alene, Moderator
Hi,
!
How did your appointment go? Did you get some answers? I do hope you have a firm diagnosis and that you and your doctor have come up with a game plan as to how to proceed from here.
Please let us know how things are going, only if you feel like doing so.
Best, Erin, Team Member.
