No Way...I was 57 at the time, a bit on the older side (or so I thought) for a PPMS diagnosis. I have many lesions in my brain....Reactions0reactionsComments0 comments
So, What’s New on the MS Research Horizon?...always since only ten to fifteen percent have PPMS.”...Reactions0reactionsComments9 comments
Core Temperature...Every summer my PPMS worsens but when I can swim in a cold pool or lake my symptoms vastly improve when my core temp cools....Reactions0reactionsComments1 comments
Caregiver Perspective: Understanding Immunosuppression...My husband, Lynn, began taking Ocrevus (ocrelizumab), to treat his primary-progressive multiple sclerosis (PPMS) in March....Reactions0reactionsComments6 comments
Let's Talk Advanced MS: Representation...It is important that we take the time to highlight and share everyone's experiences, including those with advanced MS or PPMS....Reactions0reactionsComments14 comments
What Are “Active” and “Inactive” Multiple Sclerosis?...About 10 to 15 percent of people are initially diagnosed with another type of MS called primary-progressive MS (PPMS)....Reactions0reactionsComments11 comments
elliebuzynski...I am PPMS stable. I haven't walked in 12 yrs. I can still transfer and do my own ADLs. I would like to connect with someone with similar issues....Reactions0reactionsComments5 comments
Where's more regarding primary progressive multiple sclerosis?...Everything I see and read pertains to RRMS. I have PPMS and never hear mention of this. I was told that there are no meds for this....Reactions0reactionsComments2 comments
Primary Progressive MS...I was diagnosed in 1990 with PPMS but had to go on long term disability a year and a half after my diagnosis. I have extreme pain and no...Reactions0reactionsComments8 comments
Busy Being Sick with PPMS...I've had PPMS for 11 years now & haven't worked for 6/7 of them. I am pretty busy too....Reactions0reactionsComments1 comments
Holiday Time...If he is not working, all he wants to do is go on holiday, but having PPMS, I'm afraid it's not much fun....Reactions0reactionsComments3 comments
I Have Learned so Much from Everyone Here...I am the mother of a daughter diagnosed with PPMS at 40. Doctors have said she was most likely misdiagnosed a long time ago....Reactions0reactionsComments0 comments
7 Doctors to Figure It Out...My name is Traci, and I have PPMS. Life has been challenging, but my wonderful husband is always by my side....Reactions0reactionsComments0 comments
You have MS, but you look so healthy!...Even with PPMS, I hear this all the time....Reactions0reactionsComments10 comments
5 Years of mis-diagnosis, to PPMS...I have ppms and in the years since it started I have accumulated quite a few symptoms....Reactions0reactionsComments1 comments
Recently Diagnosed with PPMS...I was recently diagnosed with PPMS, to which I am not yet excepting well....Reactions0reactionsComments11 comments
They say a change is as good as a rest. Me I'd like a rest from all the changes....I'm 45 and was diagnosed with PPMS (only) a year ago....Reactions0reactionsComments0 comments
These things are sent to try us ?...She diagnosed PPMS, with the caveat that I had probably been exhibiting symptoms for at least five years....Reactions0reactionsComments1 comments
MS Hatred...I was diagnosed with PPMS about 6 years ago. I was in a state of denial for at least a year....Reactions0reactionsComments10 comments
PPMS: Healthier Considerations to Live to the Fullest...Yes, I realize having PPMS can make daily life a little challenging, as we know all too well....Reactions0reactionsComments23 comments
