symptoms unexplained by specialists
In 2002, I was diagnosed with asymptomatic MS, because only my brain had lesions. In 2020, a blind spot appeared and neither an MS Specialist nor an opthalmologist can explain why; my eyes and optic nerve are fine. Also, no one can tell me why the tightness in the front of my thighs occurs - where is the damage?
Well,
, I wish I could offer you a clear answer, but if a specialist and an opthalmologist can't tell you, I sure as shooting can't, either! Our brains are so complex and I think even the most knowledgeable specialist tends to avoid giving definitive answers at times. Frustrating, I know. But, I think I prefer that to them pretending to know for certain and basically fibbing to their patients. I do hope as we continue to study the brain and MS, we do come up with better answers than, "I don't know". After all, we have located two areas of the brain that impact language and speech (Wernicke's area and Broca's area) and we have been able to map areas of the brain. So, here's hoping that within the next few years, your doctors can tell you exactly why your thighs are tight and exactly where the damage is in your CNS (central nervous system). And, apologies for my long non-answer answer! 😉
Best, Erin, Team Member.I appreciate your honesty, Erin. It is frustrating that not all is known yet, but I am grateful for how far research has come with MS in the past 25 years.
, no problem. I have learned that its generally best to be honest whenever possible. And I agree with you that MS research has come a long way! Here's hoping some amazing progress is made in the NEXT 25 years!
Best, Erin, Team Member.
Hello! I was diagnosed with MS, Brain Lesions, Seizures, and Cerebral Atrophy. I found this information helpful and am encouraged! I had a home invasion and I was hit over the top of my head and stabbed! Fortunately, my grandfather gave me the nickname “Hammerhead” lol! The knife was deflected by my skull!
This home invasion changed my life forever! I am better, not bitter! I was in a denial phase about my MS. “No symptoms, No problems”~Right? Wrong?? Ok, wrong! I have had a lot of symptoms showing up in the past year. I am looking for reading resources (Diet and MS Management) Any recommendations for books to read for my education?? I could use all, of the helpful information! Thank you, in advance!
~Stacyoh my goddness Stacy, I am so glad you are ok! This must have been such a scary and awful experience for you. I am so glad to hear you have been able to flip your situation into a positive mindset with looking for ways to move forward. I am sending you a bunch of forum discussions and articles about diet and MS management, I really hope this is helpful: https://multiplesclerosis.net/forums/diet-recommendations, https://multiplesclerosis.net/forums/diet-and-nutrition, https://multiplesclerosis.net/living-with-ms/diet-nutrition-suggestions and https://multiplesclerosis.net/treatment, https://multiplesclerosis.net/living-with-ms/treatment-choices-regrets, https://multiplesclerosis.net/forums/ms-treatment-options. Jill (Team Member)
