Terrified of Tysabri......Tomorrow's my first Tysabri infusion and I am scared to death. I tested positive for JC Virus but apparently the cutoff is 1.0 and I'm at 0.77. I really, really...Reactions0reactionsComments4 repliesTreatment
They say a change is as good as a rest. Me I'd like a rest from all the changes....I'm 45 and was diagnosed with PPMS (only) a year ago. Looking back, hindsight being a wonderful thing, the signs have been there for probably 10 years or more but...Reactions0reactionsComments0 comments
Secret no more...I have had MS since 1961. My symptoms started when I was 3 months postpartum with my first child. I was not diagnosed till 1970 when I had moved to...Reactions0reactionsComments0 comments
Urinary Incontinence...I have bladder urgency and sometimes do not make it to the toilet in time. I work full time and teach classes for adults. This is very embarrassing when I...Reactions0reactionsComments93 repliesCoping
Time to get over this irrational fear....I was diagnosed with MS in October of 2000. In the last 16 years, I have spoken to three people that actually have MS. I was invited to a support...Reactions0reactionsComments3 comments
“I Hate This Thing…” Part 2...This thing is MS, Multiple Sclerosis. Since the first installment of my journey, back in October 17th 2013, I still have no reason to like MS. But it has taught...Reactions0reactionsComments1 comments
Damn, My Long Relapse-Free Streak Has Ended...My journey with MS has had some significant ups and downs. Some of the downs include blindness, complete loss of use of two fingers on my left hand (which is...Reactions0reactionsComments3 comments
What Is It Like To NOT Be Diagnosed With MS?...The road to diagnosis for MS can be long and winding for many patients. I’m happy for patients who receive their official diagnosis within just a few doctors’ visits. Not...Reactions0reactionsComments0 comments
Remitting. Who are you kidding?...At the last appointment with the MS neurologist, he said, "We need to take out the word, 'remitting'." Hoorah. Let's work on that. Those of us with relapsing remitting multiple...Reactions0reactionsComments4 comments
Learning More about Speech and Swallow Dysfunction in MS...Most of us are pretty well versed in the variety of symptoms that multiple sclerosis (MS) can cause, mostly thanks to our vast first-hand experience. I also have the advantage...Reactions0reactionsComments31 comments
My MS Story Written and posted in 2015...First know that I always considered myself healthy, active, and vibrant; until I wasn’t. In the early years of the 1990s, my early 30s. I began to create and sense...Reactions0reactionsComments0 comments
Fundraising Hints from NMSS Conference!...I went to the National MS Society Leadership Conference in November. I recorded several of the break-out sessions and stuck them on my website, but one that I liked in...Reactions0reactionsComments1 repliesCoping
JC Virus...I have been on Tecfidera for 16 months, and just finding out about this JC Virus. I was on Copaxone for 10 years before this. I now am worried about...Reactions0reactionsComments1 repliesSymptoms
Not even a year since dx...I knew for years something was wrong. I would be walking,and all of a sudden I would need to stop. I didn't think it was because I had MS. I...Reactions0reactionsComments1 comments
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5 Ways to Find the Best Neurologist for Your MS Needs...When I was diagnosed in 1986, my neurologist told me to go home and call him if I experienced any symptoms. He’d prescribe a round or two of steroids. Adios...Reactions0reactionsComments4 comments
Exhausted and short fused...My husband has had MS for over 10yrs. He's just getting to the point where he's giving in and getting in the chair. He needed to be in it s...Reactions0reactionsComments2 repliesCaregiving
I Will Be Silent No More...I thought I would try this blog again, because of so many responses I received from so many MS warriors. I met an elderly couple at a church function the...Reactions0reactionsComments3 comments
How It All Began......I have spent a lot of time trying to figure out when I started exhibiting the earliest symptoms of MS. I was diagnosed in April of 2014 but I knew...Reactions0reactionsComments4 comments
The MS Persona...I am not sure how many of us do this but I know a lot of us do, I mean, I know I do. You wake up and you just...Reactions0reactionsComments33 comments
