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Clinical trials

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Newsletter Topics

What topics would you like to see more of in our newsletters for 2024? Below are some suggested topics, but we'd love to know specifically what YOU want to see!...

Fatigue

I go to a neurologist in Seattle that specializes in MS. He tells me fatigue is not a symptom of MS! This is SOOO difficult for me to believe. You...

Dealing with fatigue

I was diagnosed 8 years ago but it’s just the past couple months I’ve become too week to do almost anything. I have to use a walker now just to...

Ampyra

I've read the early posts on Ampyra. My neuro started me on it two weeks ago. So far, no change. It apparently takes 6 weeks to have an effect. Meanwhile...

Compounded 4-Aminopyridine anyone?

My neurologist recommended the compound form because Ampyra 10mg was too high a dosage for me. I am diagnosed with "secondary progressive" MS, am 70 yrs. old, and have trouble...

Is extreme stiffness in legs a good part of the time... A symptom of MS?

Already had back pain, degenerative disk. but about a year ago, I had a spasm up and down my back, and it's only been downhill from there. Months later, it...

Ongoing Sores in Mouth

Does anybody else have issues with getting mouth sores/lesions to heal? I've tried otc gels and numbing agents, mouthwashes, diet changes, and nutritional supplements. Every time I think I have...

I've always been the ride or die

It's so very hard to admit my worst fear. I've always been the ride or die, the calm in the storm, the cheerleader in the background, the rock. I overcame...

Communicating with family members

I want your opinions and your experiences on communicating with family members. To preface this, I am still going through the evaluation process and fighting for testing with a lackluster...

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