PPMSIs anyone out there diagnosed and living with PPMS or is it just me?...Reactions0reactionsComments9 repliesPPMSDiagnosisAwareness
possible MS?I haven't been to the doctors yet,but everything I read about symptoms I seem to have alot of them. Fatigue, left arm and hand going numb. Spine always hurts, dizziness...Reactions0reactionsComments3 repliesUndiagnosed/Seeking DiagnosisSymptomsAwareness
Gold Nanocrystals for remyelination - update - phase 2 trial at UTSWHello. 5 weeks of the trial and I can report increased mobility (less footdrop,) visual acuity, and almost zero fatigue issues. Zero side effects from the drug therapy. I feel...Reactions0reactionsComments3 repliesResearch & Clinical TrialsAwarenessTreatment
Gold Nanocrystals for remyelinationI understand after reading the community rules that I shouldn't disclose clinical trial information or the specific company developing new neurodegenerative therapies. Based on publicly available information related to improved...Reactions0reactionsComments1 repliesAwarenessResearch & Clinical TrialsNewly Diagnosed
Favorite Side KickMy husband. He's been doing more and more around the house and sometimes waits on me hand and foot. He can usually tell when I'm having a bad day by...Reactions0reactionsComments0 repliesAwarenessCaregiving
America living in Australia - worth it to come home?Hello. I was recently diagnosed with Relapsing-remitting multiple sclerosis (RRMS). Luckily for me it was caught early and I was able to leap onto medication before the lesions had a...Reactions0reactionsComments10 repliesAwarenessCopingCostTreatment
Anyone living with NMOSD/ Devics Disease? We want to hear from you 💚Hey there! Jada here, I help run Neuromyelitis-Optica.net and where we support so many living with NMO. We know SO many people have had the NMO misdiagnosed as MS. Sadly...Reactions0reactionsComments0 repliesAwarenessUndiagnosed/Seeking DiagnosisSymptoms
Other peopleWhy do people who know you have MS still ask why you fall or limp? And how do you reply?? It bugs the heck out of me!...Reactions0reactionsComments5 repliesFriends & FamilyCopingAwarenessTips & Advice
Lesions without demyelination Hi guys. I’ve had a difficult time (like many others) getting a diagnosis or even assistance for my symptoms. I have had the usual indicative symptoms which have progressively gotten...Reactions0reactionsComments8 repliesAwarenessDiagnosis
Taking care of a baby with one parent with MSI’m reaching out on this forum because I need verification that I’m not crazy or that I am. Back story : married in 2008, lost my first with to GBM...Reactions0reactionsComments3 repliesAwarenessCopingCaregiving