Like the person that wrote Remember, no one knows what lies ahead of you, I was also diagnosed in 1986.
As the other person said, we know more than the MS nurses by now!
I had some terrible times in the past but now, I just carry on. I aren't in a wheelchair but I think my walking looks silly! I've had the stupid disease for just under 40 years. I have to wear a brace, but it can't really be seen.
I've never had many drugs at all; I hate taking them!
I'd like to say to anyone recently diagnosed, don't worry TOO much. I know that's very difficult, but it isn't definite that you'll end up in a wheelchair and, with the better drugs now, you might end up better off than me!
Hi
thanks for sharing with us. It sounds like you have come to peace with MS and that is great to hear. I know your message will help our community, especially people who are recently diagnosed. Jill (Team Member) Also, when I was diagnosed, there were none of the DMTs & I've never taken any, so, if I had, who knows, I might have been even better off!
I am glad you took the time to share a little bit of your experience here,
! I think the hardwon knowledge of the folks that have lived with MS for decades can be invaluable. And those words of calm can really comfort the newly diagnosed person who has been completely overwhelmed by information. It can be easy to be terrified and depressed of what the future might bring. But, as you said, there are many more treatment options and people are living and living well with MS for longer than ever.
But, all that said, we know living with MS is NOT easy.
Thanks for sharing here!
Best, Erin, Team Member.
