Spotlight on MSAA and MultipleSclerosis.net

By Multiple Sclerosis Association of America - MSAA

3 min read

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Who is MSAA?

The Multiple Sclerosis Association of America (MSAA) is a leading resource for the MS community, improving lives today by delivering vital services and compassionate support, while advancing access, research, and innovation to strengthen the MS community for tomorrow. MSAA has been dedicated to the mission of Improving Lives Today since 1970. It is through ongoing support and direct services that MSAA assists individuals with MS, their families, and their care partners. Our initiatives are designed to advance access to educational and wellness resources as well as address quality-of-life issues.

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Our partnership with MultipleSclerosis.net

MSAA and MultipleSclerosis.net collaborate on providing informative resources and supportive platforms that are of benefit to the MS community. We believe in empowering those affected by MS by providing access to resources to support and assist in the overall management of MS. MSAA and MultipleSclerosis.net teams collaborate with medical and healthcare professionals to ensure accurate, up-to-date, and helpful information is available to individuals with MS and their families. MSAA is pleased to have collaborated with MultipleSclerosis.net for over 10 years and looks forward to sharing content beneficial to the MS community. We appreciate their partnership as a regular contributor to our platforms and are thankful for the opportunity to share our updates here.

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MSAA resources

MSAA provides services and programs for the MS community at no cost, including:

Supportive platforms including a toll-free Helpline and online chat with MSAA's trained specialists available by phone, email, or live online chat, as well as an online peer-to-peer forum, My MSAA Community, offering individuals with MS, their families, and their care partners an opportunity to connect with others and share experiences in a supportive online environment.
Award-winning educational publications, including MSAA’s magazine, The Motivator, as well as our MS Conversations blog, podcasts, and on-demand video programming and webinars providing informative tips, MS updates, and symptom-management strategies.
Equipment Distribution Program offering products designed to improve safety, mobility, and activities of daily living, along with exercise and wellness options. Items include a variety of products such as shower chairs, grab bars, walkers, and wheelchairs. MSAA also offers wellness products including yoga mats and resistance bands.
Cooling Distribution Program offering cooling vests and accessories to help individuals who experience heat sensitivity.
Shared-management tools, including the My MS Manager™ mobile app and MSAA's Ultimate MS Treatment Guide, created to help people be proactive and take steps toward better health and improved quality of life.
And more!

MSAA events

Stay tuned for many exciting upcoming MSAA events, including:

MSAA’s 2027-2028 Art Showcase, in which individuals with MS from across the United States can spotlight their artwork and stories. Now until January 8, 2027, MSAA invites you to participate by submitting your three best art pieces! Please be sure to read through MSAA’s Art Showcase rules and regulations prior to electronically submitting. Eligible submissions will be highlighted on MSAA’s platforms beginning March 2027 in conjunction with MS Awareness Month. Throughout the year, twelve artists will be selected as Artists of the Month.
A number of Special Events, including MSAA’s Improving Lives Benefit. Events are held all over the country throughout the year.
Several Team MSAA Endurance Events . Throughout the year, individuals and groups who join Team MSAA, can participate in various endurance events across the country. Funds raised by participants in these events allow MSAA to provide free programs and services to the MS community.

To stay up-to-date on all upcoming MSAA educational programs, webinars, and events, please visit MSAA's Calendar of Events.

MSAA remains steadfast in our dedication to our mission of Improving Lives Today for the multiple sclerosis community and will continue to provide educational resources and ongoing support to people with MS and their families.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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TammyjomojoMember
That’s nice. I’ll try calling Monday during business hours. 😏 For me, the support and direct services equals articles I can read and comment on and phone numbers for resources that haven’t helped. I was diagnosed in 95’, only income is SSDI and I’m living with family on 3rd floor. I can’t afford a safe place to live independently. Have to ask family to drive me 4hrs each way to pain management doctor because unable to find someone to take over my care here due to opioids. Dental bills in last 18months are close to $10,000 and are on credit card. I don’t even have a neurologist. It’s so challenging for me to be driven around. Know of any studio apartments on first level that a person with spms on SSDI can afford in Leesburg Virginia or Eagleville, Pennsylvania? A girl can dream. 🫧 Hope today is a good day! 🫧
1. Multiple Sclerosis Association of America - MSAAMember
 <inline-mention username="Tammyjomojo" user-id="4690574"/> Hi Tammy, we're so sorry to hear about your current situation and previous experiences with attempting to receive support. MSAA has a Helpline in which our trained Client Services specialists are able to provide you with specific resources in your area. We recommend giving them a call at 800-532-7667, extension 154, or emailing them at MSquestions@mymsaa.org. 
2. TammyjomojoMember
 <inline-mention username="Multiple Sclerosis Association of America - MSAA" user-id="4011714"/> I appreciate you replying. I have called Helpline, I will try again. Usually I wait a year before calling/reapplying. I get referred to places (usually gov) and given more numbers I’ve already tried. After a lot of paperwork, time, energy I don’t have, requests for additional documentation, etc., one of 2 things happen. #1-I qualify, nothing available. For example, housing has 3yr waiting list that can’t take more submissions. I’ve looked at the “housing”. I deserve a safe, clean place to live. #2- My SSDI is $9-28 over limit. Example would be Medicaid. I am thankful I do receive $24/mth SNAP, have Medicare supplement (cost $185/mth) and very grateful medical marijuana ($$$$) is legal in this state. It works great for many of my symptoms. Doctor prescribes it and pharmacist fills it but I pay for 100% of cost and it doesn’t count as “out of pocket”. Being disabled and trying to get assistance is a full time job. Add to that I’m 62 now. Gotta go now. Dealing with CareCredit bills. 💸
colette4Member
I am having a lot of trouble now. I've wanted to move to a building with an elevator. I've been stuck on the third floor for probably for 20 years. 
1. Erin RushCommunity Admin
 <inline-mention username="colette4" user-id="3959460"/>, ugh. The third floor is bad enough, but without an elevator? And you have MS? I totally understand your desire to move to a more accessible building. Best, Erin, Team Member.