World MS Day...I want to thank Laura Kolaczkowski for bringing it to my attention that World MS Day is just around the corner. My MS doctor didn't know anything about it, and...Reactions0reactionsComments1 comments
Hoping you have an Episode-Free day....Being diagnosed 3-1/2 years ago, just after my 53rd birthday was a very unpleasant and terrifying experience to say the very least. How long do I have?...What do I do...Reactions0reactionsComments2 comments
MS to MBA...Holding his hand my life was over. I had left work early at a dental office to hear the confirmation in September, 2004, I in fact did have MS. My...Reactions0reactionsComments2 comments
MS or NMO?...Hi, for around 3-4 years I have seen a succession of neurologists who say I have NMO, and others who say I have secondary progressive MS. It is quite confusing...Reactions0reactionsComments3 repliesCoping
My greatest teacher: MS!...I was diagnosed with MS just after my 17th birthday, and it shattered my perception of who I was. I had been an athlete and I was planning to go...Reactions0reactionsComments2 comments
Never Apologize...I’m Dying! Or at least that’s what I feel like. MS tends to put me in a fragile wavering psychotic state. Between the optic neuritis, numbness, fatigue, dropping things, tripping...Reactions0reactionsComments14 comments
Are your adult children involved?...My children are now in their 30s. It wasn't until they were in their early 20s that my wife descended from remitting relapsing MS into the secondary progressive stage of...Reactions0reactionsComments1 repliesCaregiving
It doesn't have to hurt...I was diagnosed with MS May 3, 2013. That's a date I'll never forget. I felt like my whole world was collapsing around me. Just hearing the words, Multiple Sclerosis...Reactions0reactionsComments2 comments
Finding Medical Help...I Have a family history of ms. I have expressed to the physician I have been seeing, but because he has practice through a rescue mission he is limited to...Reactions0reactionsComments1 repliesDiagnosis
Hold on...Hardest thing to change sometimes is my mind... flip flopping between denial, taking care of self and getting ready for worst case scenario. Since I am not MS and it...Reactions0reactionsComments0 comments
Fighting MRI Fatigue...Throughout my life, I have always been affectionately labeled as "accident-prone." Maybe it was because of the time I broke my leg skiing and needed a couple of surgeries to...Reactions0reactionsComments48 comments
What about Secondary-Progessive MS?...Is anyone paying attention to SPMS? It seems like an orphan disease. I diagnosed it. Honest. My physician said "I guess you're right." I know MS is hard to diagnose...Reactions0reactionsComments6 comments
MS SUCKS...I was diagnosed with MS at age 17. It was my high school graduation gift lol. I've had multiple sclerosis for 21 years. Stopped working in my late 20's due...Reactions0reactionsComments1 comments
Lemtrada Anyone?...Anyone out there taking Lemtrada? I recently traveled to Dresden Germany for my first 5 doses. I am writing a blog about the experience as well as other places to...Reactions0reactionsComments28 repliesTreatment
Why is it so hard to get treated for MS?...I was diagnosed with MS in May of 2010 after years of trying to figure out what was wrong with me. I woke up one morning paralyzed from the waist...Reactions0reactionsComments23 comments
How 9/11 and MS came together for me....How 9/11 and MS came together for me. On September 11, 2001 I was sitting in the waiting room at my primary care Dr.’s office with my wife CINDY ...Reactions0reactionsComments0 comments
Watch more horror movies!..."Multiple Sclerosis sucks... but zombies don't want to eat my brain!" -alchemie (est. 2008) I worked for Foster Care for a little over 5 years. I'm currently working part-time at...Reactions0reactionsComments2 comments
new symptom...Early last week I was greeted with a new symptom and spent the better part of a day in the local ER. How do I know when to phone my...Reactions0reactionsComments0 repliesHealthcare Team
No Help...I was diagnosed with MS in 2009. Since then I've been to 3 other neurologists. I have lifelong epilepsy but no help at all for MS. No centers close by...Reactions0reactionsComments1 repliesCommunity Resources
Tips I Learned About MS, Pregnancy and Becoming A Mother...Twenty-one years ago I became a mother. Finally. After two traumatic miscarriages, a lot of stress and many issues with my MS, I finally became pregnant one more time. I vowed to...Reactions0reactionsComments2 comments
