Weird MS Symptoms
Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?
Share your "weird" symptom here and see if others have.
Inner ear pain
Thank you Erin. Just to let you know, I’m 70 years old . I had a complete Hysterectomy at 35. These “heated surges” I feel, are from my MS. My PCP not knowing, wanted to stop a medication given by my Neurologist. Fortunately my Neurologist recognized the problem and explained that w/out this medication, my Heated situations would be 10 x worse. I also use an ice vest that surrounds my body, throughout the summer here in MI. So Erin I just wanted to let you know my “Power Surges” are not hormone related.
Have a blessed day!
, thanks for clarifying! I never want to assume, as I think doctors sometimes do that enough and no one needs some random internet moderator doing that as well! I am glad your neurologist was able to stop a medication change that would have impacted your quality of life and that your cooling vest helps for those heat surges you just can't manage to fully avoid.
And can I just say that the picture you shared is absolutely adorable?
Best, Erin, Team member.
So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.
, conversations like this come up on this site from time to time; that bone deep cold that seems inexplicable to many doctors. While I am not a doctor, I have seen comments like yours enough to consider it to probably be yet another MS symptom. Here's a recent conversation from our forums on this topic -- https://multiplesclerosis.net/forums/feeling-ice-cold. And here's an older discussion on the topic -- https://multiplesclerosis.net/forums/feeling-cold. I hope you and are able to stay warm as we head into winter in the Northern hemisphere!
Best, Erin, Team Member.Thank you so much! This is more helpful than you can imagine. Happy Halloween!
My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.
It's the nerve endings. I have very thin nails; I have had to now have gel nails on. I was waking up like I had a fight with a cat and lost. I was put on Amitriptyline works great, however now having worse memory issues. my finger nails are very thin and weak too. They tear so easily that they are continuously sore and unsightly. I too have found that using nail gel makes them stronger but I worry about the possible damage to my nail bed with long term use.
Yes I try not to startle but the noise is overwhelming.
Me too. It's very startling. Try my best to manage the reaction
