Weird MS Symptoms
Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?
Share your "weird" symptom here and see if others have.
Inner ear pain
me tooI had MRA etc I saw neurointerventional radiologists. All neurologists dismiss this. In the beginning, I was misdiagnosed with Ménière's disease. It was and still is my right ear.
This is definitely tied to my balance. It the beginning it was faint , then became older every year and mire chronic. It is always dismiss. I just found out I have a large cyst in a sinus by my right ear. I am going to see a sinus specialist.
To me - it sounds like a nerve pulsing in the rthymn of my pulse. I have tried but no results.
So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.
I find this happens to me when I feel a breeze or draft when sleeping. I have learned to coverup snugly with a comforter to mitigate the twitching. I’ve also closed the air vent in my bedroom. I wonder if a weighted blanket would help with this. , not to laugh, but if you’ve ever seen Keeping Up Appearances, and seen the nervous neighbor friend of the indomitable Hyacinth Bucket ;which she ridiculously insisted others pronounce as Bouquet!), that dear lady inevitably ended up dropping the hot tea or coffee Hyacinth offered her daily, bc Hyacinth was also so loud & abrupt, it freaked her friend out!
All that as a way to say, maybe don’t make your coffee, tea or soups so hot that they can scald you. And maybe use an absorbent cotton placemat wherever you drink those things to catch any spills before they dribble onto you.
I can’t take such hot beverages myself, bothers my tongue too much, not related to MS.
Good luck, & do try to catch some reruns of that old British series, it is hilarious! Laughter is something we all need, in abundance these days.
My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.
I feel the bugs crawling on me too! I feel it and I think it’s ants crawling on me because I live in a wooded area where there’s lots of bugs getting into my house. But when I look I don’t see any bugs but I could feel them crawling on me. I have a hard time explaining it to my friends and family who look at me funny like I’m going crazy 😂🤣😁 oof! But you are not alone in those sensations, as you can read from others here. No idea if our MS researchers & neuros have come up with any treatments for that icky symptom. Have you mentioned these to your MS Neuro?
Wishing you all the best, & don’t fail to tell your fam & friends this is not such an uncommon MS symptom, & that you are NOT crazy!
Yes I try not to startle but the noise is overwhelming.
Me too. It's very startling. Try my best to manage the reaction
