MS, Crohns, livedo vasculopathy...I'm wondering if anyone has any of these diseases or all 3. What kind of meds do you...Reactions0reactionsComments1 replies
I keep getting UTI's. They say my bladder doesn't completely empty why is that?...Reactions0reactionsComments6 replies
I Can’t Do It Alone...It has given me a lot less bruises both externally and to my pride. I learned I need help. There... By jaxx1 min readBookmark for laterReactions0reactionsComments0 comments
Botox for spasticity ...Hi folks, I'm putting on my 'big girl pants' - moving on from piggybacking on others' messages, and posting my own query...Reactions0reactionsComments4 replies
It's all started at 3 years old.....Thanks to my Mom and progressive science I was saved from pain in my deformed by RA (rheumatoid arthritis)... By liliana451 min readBookmark for laterReactions0reactionsComments3 comments
I Never Saw It Coming....RRMS at first I had no feelings from the waist down I could sill walk and everything but as time...Reactions0reactionsComments2 replies
Still chasing a diagnosis...So what’s the point of chasing the diagnosis now? Thanks if you read all this. MS groups are the ones... By Betts2 min readBookmark for laterReactions0reactionsComments7 comments
SPMS...I've had over 20 MRIs plus lots of blood, urine, CSF, functional and other tests in the 1.5 years that... By tomn1 min readBookmark for laterReactions0reactionsComments2 comments
Life Doesn't Stop...Just Because I Have To...had MS, and he really thought I should go see a neurologist and get tested for MS. So By kawigma3 min readBookmark for laterReactions0reactionsComments0 comments
A Caregiver's Thoughts...For the first fifteen years many symptoms would come and go. However, life was fairly normal as we adjusted to the... By bransonjohn2 min readBookmark for laterReactions0reactionsComments3 comments
To Lemtrada? or not to Lemtrada?...better than others, but the damage will catch up with me down the track and we don't want any new lesions.... By korrie-jade1 min readBookmark for laterReactions0reactionsComments0 comments
Asking for help (response to Stephanie's article)...Dad had a 'stroke' in the 1950's, which was much later identified as his first MS attack.... By leannhh1 min readBookmark for laterReactions0reactionsComments0 comments
I’m of No Use – Save Yourself!...Am I the only one? I can't possibly be. How do you explain that?... By sp6g44 min readBookmark for laterReactions0reactionsComments8 comments
Going out while being on Ocrevus...I'm just trying to navigate through this and see how it impacts the daily lives of others and if Reactions0reactionsComments9 repliesCopingAwareness
Somewhere Smiling...I have painful days, but I also have joyful days. I smile when I awake, I smile when the pain leaves... By kawanda1 min readBookmark for laterReactions0reactionsComments2 comments
Don't Grouse, Degauss. If You Can't Chill Out, Chelate....I've written using this title so many times because it so aptly describes what I am doing about ridding myself of By 1 min readBookmark for laterReactions0reactionsComments2 comments
Insurance Insecurities...I’ve had three party phone conversations with me, the provider, and the insurance company and even then we cannot resolve By messeeone3 min readBookmark for laterReactions0reactionsComments3 comments
Anyone else had their MS symptoms blamed on menopause?...For some years now I have strong symptoms of MS; I am now in the menopause and my doctor says that's...Reactions0reactionsComments7 replies
Part of my story and in need of physical help...So I was diagnosed in May of 2020, but I've probably had MS since 2017 as subtle RRMS....Reactions0reactionsComments1 repliesAwareness
Prescription costs sky high! 🙁...Fast forward 24 years; I had to retire early on long term disability due to my MS and By suemango1 min readBookmark for laterReactions0reactionsComments1 comments