Diagnosed with MS in 1996. I am now on Ocrevus. Had 4 Bladder Installations for Interstitial Cystitis, but still have the burning down there. Looking for some advice.
Erin RushCommunity Admin
Hi, !
I apologize for the delay in responding to your post. I actually went and did some digging on our sister site dedicated to bladder cancer to see if anyone there was familiar with intersitital cystitis (I know IC isn't cancer). Unfortunately, both on that site and here, there don't seem to be too many people with personal experience with this issue. That's not to say that they're not here, but they haven't discussed IC if they are living with it.
So, all this to say that I don't think I'll have any helpful advice for you. As a woman, though, I would say don't hesitate to contact your doctor about the pain you are experiencing. And I know women's pain and discomfort is often minimized, so please don't hesitate to advocate for yourself, if necessary.