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CALMING, RELAXING WITH MS

I believe all with MS will find out sooner or later that getting "brain control"/emotional control can be so vital to help with ongoing , progressive MS symptomolgy. In Sept 2026 get to 45 yrs since first MS FlareUp ( 18yrs old in1st college simestet). So, my experiences with MS are indeed many & with personality & history of being an overachiever, had to so quickly had to learn to navigate differently as dealing with unpredictability. Initially, as much physical activity as I could pack in a day served so well to calm metabolism outbursts of anger (& ramifications thereafter) & let me know (think) I was still in control & being an accomplisher still existed, being the best mode of taming stress for yrs.
As days, yrs continued & more physical limitations ensued, had to focus more on meditation & whatever music was indeed calming, rejuvenating ( and these in specific remain what I need to keep very high priority & remain so effective & moreso in recent times). Supportive family & friends have not always been available to me, tho, exercising as much as possible thru the years, meditating, singing, having pets have all added to my ability to deal with all kinds of stress along this MS journey & received so many comments, observations from.others that showed them surprising resilience & endurance. . . There does remain times of feeling very overwhelmed with physical torture of extreme sensory nerve excitation daily( electric current-like impulses all over body= much stronger than "pins & needles" & body contortions from insane spasticity now head to toe). I have to give so much credit to whom I consider to be the best counselor in the world- one who always gives me free reighn with topic of discussions & acts as my verbal "punching bag"-=another current main source for more comfortable survival, so needed. Otherwise, we need to investigate whatever stress relievers presented to us in any way & that has worked for others ( no matter how odd the 'thot' of some ideas may seem initially ). ALL THINGS CONSIDERED, YOU WILL REALIZE HOW MUCH INNER STRENGTH YOU HAVE; JUST BELIEVE IT & HANG ON TO IT! CIRCUMSTANCES MAY OR MAY NOT CHANGE, BUT, FINDING OUT THAT YOU CAN ENDURE IS IN ITSELF A "PAT ON THE BACK" FOR YOU; PRAISE YOURSELF FOR ALL OF YOUR EFFORTS & KEEP "SELF TALK" AS POSITIVE AS POSSIBLE!!!

  1. Thanks for this encouraging message. It does sometimes feel like too much to handle. The things that get me through: meditation, yoga, whatever form of exercise works (have had to be flexible with this but movement always helps), and adapting as necessary in order to stay in the world and connected to other people. There's so much joy to be had despite challenges. Well done for your persistence and endurance--keep it up.

    1. I agree. This story really highlights how important it is to be open to adapting and adjusting. And I think that’s the hardest part for a lot of people because that can be such a frustrating thing to do time and time again. But again, being patient with ourselves and giving ourselves grace will be the forest that carries us all through day-to-day. -Latoya (Team Member)

  2. This is absolutely a beautiful reflection. I can truly tell that you’ve had to pivot, adjust, learn, and go through a cycle of rebuilding yourself and your confidence through your journey and I commend you for how you’ve gone through so much with so much strength. I especially liked your reminder to stay open to trying different things and to be patient with yourself along the way. Whether it’s exercise, meditation, music, therapy, or something else, finding what helps you get through the hard days is so important. Living with MS isn’t easy, and it’s important to recognize the strength it takes to keep adapting and moving forward. Thanks for sharing what’s helped you over the years. I know it will encourage someone else 🧡 All the best to you, Latoya (Team Member)

  3. My idea of overcoming does include doing more per se, as not becoming reluctant to try. Accepting limitations comes after pain has overcome my will. (I feel silly for that) Pain was not the original symptom, overdoing was. Now I view the overdoing as the symptom since I was absent symptoms before, apparently.
    I have learned to become a little creative with the need to do. I consider my tasks or my 'I want to do' list and see what can be expedited and what can't. Then I put time limits on what can't be accomplished quickly.
    Nothing I have done in my life ever came quickly, so I adjusted my time demands to include that experience. I stopped thinking so much about limitations and began using my brain to figure ways around those limitations. I started feeling useful to myself again. The goal changed from finishing to staying with it until it was accomplished. MS seemed to have added an unhealthy and ambitious character flaw, the need for instant gratification. Perhaps a creeping fear for mobility pushed that along.
    That desire to conquer tasks turned into compulsion for a little while, until that made me feel out of touch. I gave up doing the most with the moment when I figured out that the moment was not a quantity of time. Not in relative terms like the past or the future. I was losing all my moments to the possible future.
    I started filling a larger coffee mug and contemplating whatever thought were auditioning. I began looking at the time I could save instead of the time I can cram full of achievements.
    I noticed the pond in the back yard again and made friends with turtles.

  4. I think you shared a lot of perspective and wisdom in your comment, . I just found myself nodding along to each sentance I read. It can take some deep introspection and sitting with your own thoughts to get to the root of WHY you feel compelled to do certain things and also to figure out what you TRULY want. I mean, I think we all think we know the answers, but maybe we don't. It sounds like you have definitely figured out what works best for you and how to work with (and around) your MS to get the most out of each day. And, yes, that doesn't have to mean accomplishing a big list of tasks or something super challenging, like climbing a mountain. A fully realized day can be enjoying the beauty of your pond and noticing the changes that occur around it each day. And, frankly, making friends with turtles sounds like an A+ day to me!

    Best, Erin, Team Member.

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