Looking at an InterStim
Hi Community -
I am new here, but would really like to hear from folks who have had an InterStim placed? I have gone through ALL the options in the past year for OAB: meds, PT, behavioral stuff, acupuncture.... this is my system's "last stop" to help with a problem I never had until about 2 years ago. SO.Annoying.Geeeez!
I am supposed to have a lead placed mid-month, and I'm curious to hear from others who have gone this route. TIA!
Hi
. I searched our archives and I haven't found anything yet from members who have had an implant, but I know this was discussed in our Facebook community and, from what I recall, the experiences were all positive. I hope you get some responses from the community and that the implant gives you more freedom and comfort. Keep up posted of you don't mind doing so. Thinking of you. - Lori (Team Member) 
Hi! I'm Therry, one of the moderators MultipleSclerosis.net on Facebook, and I read about your question here on the Mother Ship, as I like to refer to the Health-Union site. Given that Lori thought she had seen an article on the InterStim device, I checked on our Facebook page, and came up with a BUNCH of articles on bladder difficulties. Goodness knows that was my presenting symptom when I first got MS 44 years ago. Here is a link to the search on MultipleSclerosis.net: https://www.facebook.com/page/101224973374365/search/?q=InterStim As you can see I searched for any mention of InterStim. I think if you were to go to our Facebook page at this link, you could also do your own search for helpful articles. And please keep in touch -- I'll keep looking too. I'm currently doing Pelvic Floor Physical Therapy for my bladder issues, and it is tricky. But you are so far from being alone -- at least half of people with MS have bladder and bowel issues. And we're here for each other, so an answer and some helpful information is out there and together, we'll find it.
In solidarity, Therry, a Team MemberAnd there's a very helpful video from Kathy Reagan Young, the woman behind the FUMS community, and you may want to watch it! here's a link for that video https://www.facebook.com/MultipleSclerosisDotNet/videos/982687545228099
In addition, here's a link for articles on our Facebook page that mention bladder issues. This second link is kind of overwhelming, there are so many articles, but you m ay find something that helps you: https://www.facebook.com/page/101224973374365/search/?q=bladder%20issues
IN solidarity, Therry, a Team Member
