So confused,,,…loosing my fight!
Hopeless is so confused and no doctor
FINDINGS:
There is no intracranial mass or mass effect.
Ageappropriate appearances of ventricles and sulci.
There are a few foci of increased T2/FLAIR signal (lesions)
in white matter which have the following characteristics
Several lesions greater than 3mm long axis : yes
Juxtacortical lesions: yes
Periventricular lesions: yes
Deep to subcortical lesions: yes
Infratentorial lesions: yes
Lesions in the upper cervical cord: no
New lesions when compared with previous: no
Lesions which restrict diffusion: no
A normal variant partially empty sella is redemonstrated.
There is a unchanged, stable small pineal gland cyst.
There are no regions of restricted diffusion. No unexpected
foci of susceptibility.
Extracranial soft tissues are within normal limits.
IMPRESSION: Stable appearance of white matter lesions,
with MRI appearance satisfying McDonald criteria for dissemination in space. No MRI findings suggestive of
active demyelination.
Not much fight left
Thanks hopeless
Hi,
. I don't blame you for feeling, well, hopeless.
I went a reread your older posts to make sure I didn't miss anything. But, frankly, I'm as confused as you. With all the criteria that your MRI results meet, what in the heck do the doctors think you are dealing with, if not MS? And, apologies if you did answer this before, but what treatments are they offering you? Have they decided to just not treat your symptoms? I get that your latest MRI may have showed no active demyelination, but you are still dealing with lots of issues that should be addressed.
Ugh. I wish I could wave a wand and you would have a great medical team that actively listens to you and takes your concerns seriously. Unfortunately, I don't have those powers.
How are you managing each day? I know you mentioned in a previous post that you are on disability and use walking aids. Do you feel like your symptoms are worsening?
I am so sorry you are in this position. And I do hope some of our other community members can offer you some support and understanding (and maybe some great advice).
Best, Erin, MultipleSclerosis.net Team Member.thanks for listening not offering any suggestions
Feb17 MRI THAT I JUST WROTE ABOUT IS EVERY OTHER MRI THEN MS AGAIN AND BACK TO FEB 17/22 REPORT JUST DIFFERENT DATE!
They just can’t get it write while I’m getting worse every day! I will probably never know
What’s happening to me. I don’t manage every day, I just stay in bed or on the couch, I never go out and never have visitor except my 3 grown children pop by once and a while
Thanks for caring
