My MS 'Next': Considering Home and 'Re'-Homing CareI've been grappling with thoughts of my MS 'next.' Who knew that a 'pivot' could induce such major changes? I didn't. It's time to really evaluate what specific care I...Reactions0reactionsComments5 comments
Supporting My Support Partner: Part 2Anita talks about both managing her own MS and caring for her support partner in a time of need. Read the first part of her story. The tough times called...Reactions0reactionsComments3 comments
Sharing One Of My 'In Spite Of MS' ExperiencesI did a thing, and it was awesome! I was unsure initially but encouraged to go for it, so I did. It was a success. I couldn't ignore the twinge...Reactions0reactionsComments14 comments
If I Could Get Better, I Would“Have you tried this diet? Maybe you’d be better if you worked out more. Have you tried using more weed? I heard mushrooms are helpful, can you try that? I...Reactions0reactionsComments7 comments
Caregivers and BurnoutCaregiver: what’s the first thing that comes to mind when you see this word? This may vary depending on whether you are the caregiver of someone diagnosed with multiple sclerosis...Reactions0reactionsComments0 comments
You’re Invited: Girls Night in the Hot Tub (with a Heat Sensitivity)Imagine getting an invitation to a girls' night out with your closest friends, where you all planned to catch up on life, have some snacks, and unwind in a hot...Reactions0reactionsComments29 comments
Community Spotlight: First Descents and Its Programs for People With MSWe sat down to talk with Kristin McMaster of First Descents, a nonprofit that provides free outdoor adventures for young adults (ages 18 to 45) living with health conditions such...Reactions0reactionsComments0 comments
Supporting My Support Partner: Part 1Living with multiple sclerosis (MS) has made it important for me to accept assistance and support. I had to learn my own limitations and when to ask for what I...Reactions0reactionsComments5 comments
My Experience with DMTs for MS and What I Wish I Had KnownThroughout my multiple sclerosis (MS) journey, I’ve been on a variety of different medications for MS called disease-modifying therapies (DMTs). DMTs come in several forms including injectable medications, oral medications...Reactions0reactionsComments79 comments
My Nurse Stole My DignityI've lost a lot in my 23-plus years of living with Multiple Sclerosis. My career, numerous partners and relationships, my ability to run (and sometimes even to walk), and travel...Reactions0reactionsComments51 comments
MS As It Relates To RuthlessnessMS is a chronic, unkind disease to live with. You're moving about in life, and it accosts you. Just happens upon its unsuspecting 'victim' for no known reason. When it...Reactions0reactionsComments4 comments
Isolation and FatigueMental health is one of the most critical pieces of our overall health we can tend to, but it is often glossed over quickly or not talked about at all...Reactions0reactionsComments27 comments
MS Versus the Swedish Healthcare SystemIn this article, I'm talking about the Swedish healthcare system in general terms. Denied insurance, medical debt, flare-ups due to financial stress, or getting approved for disability. These are just...Reactions0reactionsComments6 comments
People Will Get Tired Of You Being SickLiving with a chronic illness like multiple sclerosis often means that you have to face some very hard truths. You might have to stop working. You have to go to...Reactions0reactionsComments18 comments
Life With MS Fatigue Feels Like a Story for OprahI hate when extreme fatigue messes up my whole day. Today is no different. I had things to do. A list of places to go and people to see. But...Reactions0reactionsComments15 comments
Learning Not to Catastrophize with MSSometimes everything in my life with multiple sclerosis (MS) works out so well it’s like all the pieces just fell perfectly into place on their own, and it feels awesome...Reactions0reactionsComments18 comments
Using My MS VoiceMS is the abbreviation for the chronic degenerative autoimmune disease multiple sclerosis. However, those very initials could also stand for many snatches, because that's exactly what it does: it snatches...Reactions0reactionsComments2 comments
Appointments, AppointmentsIt is managing the symptoms that take up the vast majority of my attention. Just living every day in this body takes time and effort. Heck, sleeping still requires me...Reactions0reactionsComments1 comments
How Disease Onset and Rejection Initially Contributed to the Loss of My Sex DriveSexual desire has always been an important part of my identity. Something that makes me feel like the spark plugs are all firing away, a sure sign of my mental...Reactions0reactionsComments5 comments
MS Changes Our Life, Yet We Can Still be a Positive InfluencerSome health illnesses are with you for a short period, then you heal and move on. MS, as you well know, sticks around forever, and changes your life. However, MS...Reactions0reactionsComments0 comments