faithholdsme's Status Updates

"I think there comes a time with those of us dealing with MS to put something out here in which we need someone say "hey, that is what Im dealing with too"....so here goes. I have had MS since 2003. In the beginning it was horrible. I spent a lot of time in hospitals and places like Sheltering Arms to recover. Over the years I have had my roller coaster ride of loads of symptoms to some symptoms. What I am dealing with NOW is the oddities of the disease. For example, GI issues. I have had them for as long as I can remember, but it has most defiantly gotten worse. If Im not constipated I am the exact opposite, and this is from week to week. It is a huge struggle. I have a slow emptying stomach so Im on medication to help things along. I can be backed up for days just to be doing the exact opposite days later after doing all I can to get things moving. I look 3 months pregnant most days of the month. I HATE THAT! I also have bladder issues. I have days where I hurt all over and do not want to move in my bed much less get up but I push myself. Pain management is ridiculous as doctors do not want to give pain medications to us because people in this world abuse them. They do not realize there are people that NEED it to function. So, with those three things being said, my MS family--what do you guys do for these three issues? I need to find some kind of direction. "

"I recently read an article on MS word vomit. I found it was right up my alley. I thought I would just add to it the feeling I get when I know what I am doing (on the computer) and I know the information (any program, say email or quick books) but when trying to explain information from one of those places has me saying all the wrong things. It is clear as can be in my head but 'vomit' comes out, word vomit that is. It's worse when 1-Im trying to discuss whatever with me husband. It makes me look so dumb and 2- if you are with a group of friends and trying to carry a conversation and it looks like they are hanging on every word,waiting for the next. I see that look and it makes the issue even worse. Even after16 years he still gets pushy, trying to finish the sentence for me or waves me off as if to say forget it, I know what you mean. I look fine, therefore I am perceived as dumb, I'm guessing. In a different scenario we are having a conversation that becomes heated because he wants me to tell him what Im thinking and I cannot get the words out. That makes me look like Im trying to think of something to say, when really I KNOW what I want to say but it cannot make its way to my lips. Im glad I ran across this article. I feel less alone in the world of word vomit. If anyone has suggestions on how to get your partner to read up on MS to understand it better, or if there is a podcast out there (he loves those) PLEASE let me know! Thanks😀 #keepthefaith "

"Well went from bad to worse. Admitted today, been told 3 days minimun. My symptoms mimic a stroke... doing every test... anyone out there?"

"Hello MS peeps! I am new at this (the online communicating part). I have had MS since 2003. At first I had relapses once or twice a year. Ive been lucky the last 6 or so years with small flares of 'parts' of my body. I was wondering if anyone is out here that suffers with a 'slow gut' with swelling/bloating? This is very new to me. Also, my mouth--looks like Im trying to talk after a stroke, my tongue and lips and such move funny like Im slurring like Im drunk. Any insight would help me to know someone else out there knows what Im saying."