Building a Better Life With LEGO and MS...Living with Multiple Sclerosis has taught me a lot. One important lesson I’ve learned over the years is that living with a disease like this requires a certain amount of...Reactions0reactionsComments34 comments
Any recommendations on an adaptive bike?...Can anyone recommend an "adaptive bike" for use by a person like me, with MS for 25 years. I use Lofstrand crutches to walk, hold on to surfaces & walls...Reactions0reactionsComments2 replies
Different isn't bad...it's just...different...The first Friday of the first week of Mrs Beach's sixth grade is proclaimed the “Day of Differents” in Beachland. It’s the day that I share with my kiddos my...Reactions0reactionsComments2 comments
Is a Clinical Trial Right for Me? 5 Questions to Help you Decide...Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you...Reactions0reactionsComments0 comments
My Ocrevus Toe Dip (the first 6 days)...I thought I'd share my experience with Ocrevus thus far. My first infusion was last week on Thursday and today is Tuesday, Day 6. I tried to quickly find other...Reactions0reactionsComments4 comments
I Don't Want Baby Hands...One of the many adorable things that my daughter did as an infant was to keep her pudgy little hands balled in tight little fists. I remember having to pry...Reactions0reactionsComments12 comments
MS friends...is some thing we all need...Sure…we’ll get by with out friends Yes they may reckon… Just because I have MS or TM That I’m through with looking And I’m through with searching That I’m not...Reactions0reactionsComments2 comments
Battling Brain Fog...My mind goes blank, I feel like all the education I have has gone out the window, and my head hurts trying to think straight. I get frustrated because I...Reactions0reactionsComments1 comments
The Starvation Chronicles: Day One...As I wrote yesterday, from now through Tuesday I’ll be subjecting myself to a Fasting Mimicking Diet (FMD), in the hopes that severely reducing my caloric intake for five days...Reactions0reactionsComments0 comments
DEPRESSION AND WHAT IT CAN DO...I am currently in the throws of a deep and very dark MS depression. It has me consumed with periodic thoughts of suicide. I don't have emotional help from my...Reactions0reactionsComments6 comments
Has anyone experienced a burning, tingling feeling inside their upper body?...I have this burning, tingling feeling "inside" my whole upper body...stomach area on up, arms. Has anyone ever experienced this?...Reactions0reactionsComments6 replies
I See You...My dearest friend recently wrote a blog post that I just loved. She describes how now that she is grieving the loss of her father, when Father’s Day rolled around...Reactions0reactionsComments8 comments
Mike's Story...I've had secondary MS for 15 years and the paths of communication between brain and left side, arm, leg, have become more and more impeded, and for many years I...Reactions0reactionsComments1 comments
Asking the Embarrassing Questions: My Interview With a Urologist...I have struggled with bladder symptoms since being diagnosed with multiple sclerosis (MS), and I know I am far from being alone! I not only live it firsthand, but as...Reactions0reactionsComments14 comments
What I Mean When I Say I Don’t Feel Well...Every so often everyone has one of those days where they just don’t feel well. The start of a cold? The flu? Just working too hard on too little sleep?...Reactions0reactionsComments74 comments
Has anyone experience a loss of emotional being?...Within 3 years of my RRMS I started to notice...I didn't care about myself...then my husband and finally my kids....I intellectually love them but not in my heart anymore....horrible stuff..been...Reactions0reactionsComments9 replies
Why am I still wetting after self catheterization?...I'm still having to wear protection because I'm still leaking during the day, and wetting at night....Reactions0reactionsComments1 replies
I have had MS for a year and am thinking about getting pregnant, do y'all think it's safe?...Reactions0reactionsComments4 replies