Maybe It's a Family Thing..."Does someone else in your family have it?" It's one of the first questions that comes up when I tell people I have MS. As the jury is out regarding...Reactions0reactionsComments9 comments
Memory test...Has anyone else had a memory test done? I did one today and feel like I didn't do very well. Just stressed now....Reactions0reactionsComments6 repliesUndiagnosed/Seeking Diagnosis
Things that drive me crazy - a rant...I cannot open pill bottles, pop pills out of their strips. I cannot open tins. My wheelchair is too wide to get in to most places. There is not a...Reactions0reactionsComments5 repliesCoping
Spasticity in arms...I am in a relapse and the worst thing is the spasticity in both my legs and arms. I am now on solu-medrol but it is slow to help. I...Reactions0reactionsComments0 repliesSymptomsPain
Spasticity in arms...Hi! I am currently in a relapse and the spasticity is killing me! I have in in both my legs and arms. I have never had it in my arms...Reactions0reactionsComments3 repliesSymptoms
WARRIOR...I was diagnosed with ms in 2017. Im 54 and a retired nurse that worked in a jail for 30 years. I crashed in 2017 with my bladder went into...Reactions0reactionsComments6 replies
Applying for disability.......My husband was just diagnosed with progressive MS and he stopped working for the last 6-8 months. Although he's taking Ocrevus his MS hasn't progressed any further, but by the...Reactions0reactionsComments2 repliesInsurance & DisabilityWork & EmploymentNewly Diagnosed
Arm Pain...I have not been diagnosed with anything. I see a neuro in January. However, a mew symptom has popped up and the past 3 months I have had excruciating pain...Reactions0reactionsComments1 repliesSymptoms
Dysphagia/difficulty swallowing and MS...Hi everyone, just reaching out to see if anyone has ever experienced worsening dysphagia/difficulty swallowing with their MS? My dysphagia has been steadily worsening to the point I can only...Reactions0reactionsComments1 replies
Couldn’t stop typing!...Thankyou for the kind notes back to me! I just don’t get it!m…I have so many MS lesion all in the locations to meet the McDonald criteria and older criteria...Reactions0reactionsComments1 replies
How to deal with a rapidly progressing disease....I was diagnosed with RRMS in 2000. Over the years I have always been very positive about my MS, a cheerleader, even as they changed my pigeon hole to SPMS...Reactions0reactionsComments1 repliesCaregivingCopingPPMS
Incontinence ...Speak to a urogynecologist about inserting a Neuro stimulator device. My wife’s urogynecologist states it have a very high rate of success again urinary incontinence. The procedure is outpatient....Reactions0reactionsComments5 replies
Seeking Advice about MS ...I had my first mri back in 2012…symptoms, relapses, 75% of McDonald criteria was met… then next 2019 my symptoms are getting worse…a lot of new one’s, same old ones...Reactions0reactionsComments4 repliesDiagnosis
Learn How to Use Your Voice for Better MS Care...I was 27 when I learned I had MS, and I didn’t contemplate its impact on the rest of my life. Being young and naive had certain advantages. I never...Reactions0reactionsComments11 comments
Starting and Switching DMTs: Expectations vs Reality...“OK, how am I going to treat this?” That was the second question I asked myself after learning I might have multiple sclerosis (MS). The first one being, “Huh? Where...Reactions0reactionsComments1 comments
MS Advocacy 101 - Identifying and Seizing Opportunities...Missed our live MS advocacy webinar? No problem! Check out the video below to watch it all! Patient advocacy can seem overwhelming, especially when you’re just getting started. Whether you’re...Reactions0reactionsComments0 comments
My MS-Friendly Thanksgiving Outfit...Thanksgiving is one of my favorite holidays of the year. My dad’s side of the family has 40+ members so it’s not too often that we all get together. Thanksgiving...Reactions0reactionsComments7 comments
My insurance won't fully cover my meds anymore...Having trouble getting my medication insurance doesn’t want to pay for my Tecfidera anymore so they sent me a list of what they do cover and me and my doctor...Reactions0reactionsComments7 repliesCommunity Resources
When Is It Too Much?...I decided to enter a weight loss contest three years ago. Gradually I increased my beginning fitness program from 5 minutes on a leg press, 5 minutes in a swimming...Reactions0reactionsComments8 comments
The rollercoaster ride of MS...My fatigue has gotten really bad in the last couple of months to the point that I can't do much of anything. I need to take a shower and by...Reactions0reactionsComments3 repliesFatigue
