Have been having a lot of fatigue. ...I have been having a lot of fatigue the last few days. I don't know if it's because of the MS or not or whatever. I'm so freaking tired from...Reactions0reactionsComments6 repliesCopingMental Health
Nutrition and MS...Do you believe nutrition plays a role in managing Multiple Sclerosis? Why or why not? If so, how has it impacted your journey? Have you made any changes to your...Reactions0reactionsComments51 replies
You Can Enjoy Life Despite Being Over 40 When Diagnosed with MS...You probably already know that multiple sclerosis (MS) is most commonly diagnosed in people in their 20s, 30s, and 40s, but can occur at any age. But are you aware...Reactions0reactionsComments46 comments
Undiagnosed and Frustrated...Urgh where to start. I have been on this road for way too long without being officially diagnosed. I feel like I have zero support and without a diagnosis and...Reactions0reactionsComments11 replies
Looking for feedback of people that had to switch from one medication to another...So I have been diagnosed with MS 2 and half years ago. Right after, my doctor recommended to start treatment with Natalizumab and so I did. But right now after...Reactions0reactionsComments4 repliesAwarenessTreatmentTips & Advice
Update post, but still in limbo ...So... my neurologist has basically written me off. He put on my medical chart that I have FND-functional neurological disorder, and doesn't want to follow up again. I'm working on...Reactions0reactionsComments6 replies
It's 2025!...Ok folks, it's 2025, no more stalls, delays, detours, this year someone needs to decisively DO SOMETHING about MS. If you suspect it has to do with EBV, declare war...Reactions0reactionsComments13 replies
how to help someone who has MS?...hi! i dont have MS, but my girlfriend does, and im wondering if anyone has good advice for how i can help her in our everyday lives? she has really...Reactions0reactionsComments4 repliesFriends & FamilyCaregivingTips & Advice
Mavenclad experiences?...My Neuro suggested a change to Mavenclad. I have read all the literature, risks, warning & benefits from Manufacturer. Can anyone share their experiences (pros & cons) with the DMT...Reactions0reactionsComments0 repliesTreatment
Has anyone tried using Taopatch?...I saw this ad for a product called Taopatch and it supposed to improve balance & overall wellbeing. The least expensive product they offer is $299 for 3 patches that...Reactions0reactionsComments2 repliesTreatment
Facing Spasticity in Public...On a bright afternoon, I sit at the corner café, a cozy spot with chairs that don’t quite match and the delightful scent of freshly-brewed coffee. I choose a window...Reactions0reactionsComments9 comments
I am starting to put the pieces in the puzzle together. I think I may very well have ms.....I am beyond destroyed right now. My symptoms have been muscle spasms, tight calfs, pain, vibration in both feet, easy numbness when putting pressure on my arms or legs, had...Reactions0reactionsComments2 replies
Cold hands and feet and pain on both but no signs of rynauds discoloring. Is this ms?...My hands tend to get cold during the winter and my feet aswell. I also feel joint pain on my hands (I was diagnosed with JIA so I don't know...Reactions0reactionsComments5 repliesCopingAwarenessCommunity Resources
Felt a tightness sqeezing in my left abdomen. No pain. Was it gas?...It felt better when I started sitting up and didn't feel it when I was sitting up and started standing. I only felt it when I layed down and it...Reactions0reactionsComments4 repliesCommunity ResourcesCopingAwareness
How Do I Know What is From MS?...You may know MS is called the Snowflake disease because, similar to snowflakes, no two people with MS are alike. That is pretty cool when you think about it; we...Reactions0reactionsComments31 comments
Severe Cognitive and Sleep Issues...My mum has been diagnosed since 1986 and now 71 years old Last 3 years cognitive issues going severe with short term memory and talking to people. Neurologists saying more...Reactions0reactionsComments5 repliesCoping
Is there anyone here who lives in a supportive living facility but your SO still lives in your home?...When we were first looking for a place to live, I found several affordable supportive housing sites, but they have long wait lists. Anybody choose to go in one but...Reactions0reactionsComments6 repliesCommunity ResourcesFriends & FamilyIntimacy & Relationships
Reflecting on the Holidays and Looking Ahead to the New Year...With Christmas behind us and New Year's around the corner, how are you feeling? How has your holiday time been so far and what are you looking forward to in...Reactions0reactionsComments3 repliesCoping
Chronic Fatigue ...My fatigue is so bad I cant function at all! I have to have help to get out of bed. I can’t do housework or play with my grandkids, get...Reactions0reactionsComments3 replies
Burning tongue...I can no longer eat anything that is the slightest bit spicy hot. My tongue burns. I used to be able to eat pizza with pepperoni and other spicy foods...Reactions0reactionsComments3 repliesSymptomsSide Effects
