Living on the Edge Before MS, and Then Life After MS...Let’s take a trip back to when life was an open canvas and living life wasn’t limited unless you decided it was. And then to how life changed with MS...Reactions0reactionsComments7 comments
Strange MS Symptom...I get what feels like a hot spot on my lower back. It is localized and feels very strange....Reactions0reactionsComments1 replies
How are you doing? Really?...I have an amazing person in my life, she's my mini-me. We share the same name (Christina) and were both born at the same hospital completely across the country five...Reactions0reactionsComments8 repliesCopingFriends & FamilyUndiagnosed/Seeking Diagnosis
My 24-Year Journey with MS...Twenty-four years ago this month, I woke up to a brand-new reality. MS gripped me like a pit bull shaking a ragdoll, and it felt like it shook the stuffing...Reactions0reactionsComments4 comments
Having Hard Discussions...So many in the community have encountered this so if you have advice or experience navigating the following situation, please do your fellow community members a solid and share your...Reactions0reactionsComments50 repliesCopingTips & AdviceFriends & Family
How I was diagnosed a month ago. I am 74....Last year I wasn’t feeling like myself. Many years ago a neurologist diagnosed me with a neuromuscular autoimmune disease. When I began having new symptoms - I thought it was...Reactions0reactionsComments1 repliesNewly Diagnosed
Emerging From an MS Slump: My Journey to Feeling Better...Have you ever felt stuck in a rut with multiple sclerosis (MS), unable to gather the energy and motivation to take care of yourself? While I’ve always managed to make...Reactions0reactionsComments55 comments
Curious - how much and how well do you sleep?...I have struggled with insomnia for as long as I can remember. I remember using a flashlight to read underneath my covers in bed in elementary school. I wake up...Reactions0reactionsComments2 repliesCopingSymptomsUndiagnosed/Seeking Diagnosis
Self-Cathing at Work...I was diagnosed in Winter 2024 with MS. I am also in a wheelchair and need to intermittant self-cath. I have been out of work all this year but I...Reactions0reactionsComments2 replies
MS Workplace Accommodations Led to a Lengthy Legal Battle...I was diagnosed in October 2011 at 40 years old. I am 53 now, and until mid-2021, I refused to use MS as a reason I couldn't do something. I...Reactions0reactionsComments1 comments
Walking ...Just diagnosed today not been able to walk for 3 months without a zimmer frame. Will I be able to walk again...Reactions0reactionsComments5 repliesDiagnosis
Social security...Ok I messed up my previous post. Sorry I am not good at this. I worked in pharmacy for 20 years. I was diagnosed w RRMS in 1998. I continued...Reactions0reactionsComments2 replies
The rebound ...I had an amazing week! My roommate's Mom came to stay with us for eight days, and we had a blast. My roommate was a good friend with my younger...Reactions0reactionsComments2 repliesSymptomsUndiagnosed/Seeking DiagnosisCoping
Propellor sound in my right ear!...For the 6th night in a row now I'm having a propellor sound going round on my right ear. Doesn't happen during the day, only at night when I've eaten...Reactions0reactionsComments3 replies
A Long Path to Diagnosis...I’m a 68-year-old man and was just diagnosed with MS in 2020, although I now believe I have had it for as many as 20 years before diagnosis. I've had...Reactions0reactionsComments1 comments
Most experienced MS symptoms...What are your top 5 most experienced symptoms related to MS? How do you cope with them? Do they seem to flare in unique ways?...Reactions0reactionsComments16 repliesSymptoms
My M.S. ‘journey’, so far. (I am 73 years old and having a GREAT life!))...As most of you realize all too well, the ‘M.S. obstacle course’ is a long, steep and winding mountain-climb. The path is strewn with boulders, fallen trees, torrential downpours, lightning...Reactions0reactionsComments0 replies
The question this month is does the doctor listing to you?...Over the past 22 year of diagnosis, I feel as though it took me four Neurologist to finally find one who not only listens but truly understands Multiple Sclerosis, bc...Reactions0reactionsComments1 replies
Down under upside down...I had been an active kid, a gymnast, and then a nurse. I remember one day playing basketball with our youth group kids when I couldn't judge how close the...Reactions0reactionsComments2 replies
Anyone else living with MS and not on medication?...Diagnosed in 2001 after a domestic episode caused a concussion and an MRI was ordered. Never had any symptooms that I was aware of . Took injections for 1 yr...Reactions0reactionsComments4 replies
