Chronic UTIs and a Kidney Infection. Here We Go...

By doll1976

2 min read

When I got home, I was using a walker. I usually use a cane, but I had to be on a walker for about a month and a half. Well, when I got off the walker, I was out and about, went to our local Vons, or only store in the mountains of California, and lol, behold! It was just crazy. I was in a rush and ran myself over with my big Jeep and huge all-terrain tires. Let's just get through all this because it's all crazy. It's been a nightmare since July. We could say just one thing after another.

Where the downhill seemed to start

In October 2025, I had my third Botox procedure for my neurogenic bladder and things just went even more downhill from then. Since November I've had chronic UTIs, left and right and also in February, I developed pneumonia and the flu. I needed to get intubated and flown out to a bigger hospital. Back to the UTIs. It's just been a nightmare. One antibiotic after another one and now I've developed flank pain right below my ribs and on my back. I had to take myself to the ER because I was just sick of more and more antibiotics and what do you know, I developed a kidney infection!

My life with chronic UTIs

I was diagnosed in 2017 and this has been the last 8-9 months or so. However, dang long it's been. It's just been crazy and not having my husband because he decided to commit suicide in 2023. It's been even harder for me but back to chronic UTIs. I could go on and on!! Funny, but yet not funny. So what I want to let everybody know if you don't advocate for yourself, you're just going to get to run around left and right. I've been in such a cog fog that I have just been going with things. I'm trying to get out out of this cog fog and I'm so not with it at all but I got IV antibiotics last night and of course got sent home with more antibiotics but I was with the chronic care doctor yesterday last night so I'm feeling better about it. Let me hear about your stories of UTI's kidney infections, etc.🧡🧡

June Lake Ca..beach of June Lake

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Erin RushCommunity Admin
Good grief, <inline-mention username="doll1976" user-id="3943733"/>! At the risk of stating the obvious, you HAVE really been going through it! Sheesh! I know you post here pretty regularly and I had NO idea you had so much happening to you over the past nine months or so. Do your doctors suspect your infections are becoming antibiotic resistant or are these infections being especially pesky and reluctant to go? I do hope the combo of the i.v. antibiotics and the antibiotics you are taking at home finally clears up the infection fully and completely. I know that can be hard to acheive if your bladder is not emptying fully, but I do hope you can get some relief from the constant infections. It's hard to feel sharp and on point when you're feeling, well, like crap. So, I do hope the cog fog clears up right along with the infection. And, I am so sorry about your husband. I don't know if you have shared about him on this site before (and apologies if you did and I have somehow forgotten). Being left behind in the wake of such a sudden, tragic loss can cause a whole lotta mixed emotions. I do hope you had support in the immediate aftermath and that you still have support in your life as you navigate both your MS and life after loss. Thank you for sharing your experience with UTIs and kidney infections and I hope others familiar with this particular issue will share their stories here! Thanks for getting this conversation going! Best, Erin, Team Member.
doll1976Member
I have not posted about Micah, my husband of 17 yrs before, but ty. Yes they do that is why they keep changing things left and right for me. i'm now on yet another antibiotic for 14 days, fingers crossed. alot more than all the above but will absolutely write another detailed story soon! ty Erin for just being here for all of us! 
1. Erin RushCommunity Admin
 <inline-mention username="doll1976" user-id="3943733"/>, I am touched that you felt the time was right to share about your husband, Micah. I know it's not easy to know the "right time" to share details about your life like that. While I have never experienced a loss like yours, as much as I can, I do understand what it's like to decide when to share certain information and with who. Again, I am so sorry for his loss (words really don't cut it in these situations). And you share whatever you want whenever you feel comfortable doing so. I do hope this current antibiotic does the trick and you can finally get some lasting relief! Best, Erin, Team Member.
doll1976Member
Again ty Erin for your support and kindness 🧡