MS Awareness Fact: We Need Resources to Live Better
March is MS Awareness Month and what most people are unaware of is that those of us living with MS need resources to live better.
In fact, there is a complete lack of free resources to help people deal with the emotional impact of diagnosis or the cumulative effect on mental health after years of living with an unpredictable and life-changing disease. We need resources to learn stress management and coping strategies and guidance on how to mentally transition to living life with a chronic illness.
There are a lot of free resources to help with financial assistance, and services and programs to help with the challenges of daily living and support. I think if those of us in the MS community share our resources that it will benefit all of us. If you have any, please share in the comments😀
What I am asked the most is how I got approved for SSDI so quickly. Luck probably but I think being well prepared helped. The SSDI Checklist and the ADL Questionnaire are, in my opinion. the most important guidelines to have when filing to assure that you have the required paperwork and evidence needed to apply.
I compiled a list of free resources of organizations that provide MS programs, services, grants, treatment information, support, and more. Here is the article with all the links if you are interested- https://mswellnessproject.com/ms-awareness-fact-we-need-resources-to-live-better/
This is wonderful. Thanks for sharing,
. Wishing you the best! - Lori (Team Member) My pleasure! Hopefully someone finds it useful 😊
Yes! There are mounds of free resources and it is often difficult to find an organized summary of them. Here is a link to free resources on my website that has links to articles, newsletters, magazines, MS organizations, mental health, Gov't organizations (e.g., ADA, SSDI...) drugs, research, .......... On my site, I also have tabs for videos, my almost 100 blog articles. With one click and 5 minutes of time, everyone will find something useful! Debbie (Team Member)
Wow! Debbie, this is a most excellent list of resources because, YES, as you'd said, this information tends to be in all sorts of non-linked locations!
I may actually have one for you to add - an excellent podcast (available on all podcast platforms): "RealTalk MS" by jonstrum@realtalkms.com
Have a listen!
