My legs are burning with every step that I take!
I try to mask the pain, but honestly my legs are on fire! Moving and stationary, every position I'm in my legs are burning. The spasticity is awful. I'll move past it because I'm amazing, but it is awful. It's been days with no relief.
Sharing here so I can use the safe space without mucking up the people around me. It's hard.
But we persevere, we survive. And so will I 😊
Much love to you all 💜💜
I'm sorry to hear that you're dealing with such a painful symptom. I know it's one that too many of our community members here can relate. In fact there was an article written about a similar experience that you might find really relatable. Here's a link so you can check it out and be sure to check the comments section below the article as well. https://multiplesclerosis.net/living-with-ms/morning-burning-pain
Best
Alene, Moderatorthank you! I think that it's probably ramped up right now due to anxiety. I've got my next MRI in about two weeks, and I'm anxious about both ways it could go. No lesions=being dismissed by the neurologist with a diagnosis of FND and no medical intervention, more follow up appointments to fight for testing. Lesions present... not sure how my neurologist would respond to them. The waiting is so frustrating, and I'm not sure which office my appointment is in. So I don't know if they'll be able to play music for me, I don't know if I'll get the pretty nature pictures to look at, I don't know how far I'll have to walk.
And when I get anxious, I've noticed that several of my symptoms get very severe. Looks like I'm in for a turbulent couple of weeks. But I'll get through it.
I've got my birthday coming up, literally just before the appointment. I do a reverse birthday at work, I visit all of my coworkers as I make my rounds and give them candy and treats as I go. This year I think I'll do yo-yos for the treats. As I drop off the goods, I say 'happy birthday to me' and walk off with a smile. So that should be fun 😊.
Sending all the love 💜that's completely understandable. Having an upcoming appointment can definitely increase our emotions. It's good that you've been able to recognize that so you can have some compassion and grace with yourself during these next couple weeks. Keep us posted on how it goes if you feel comfortable doing so.
And Happy Early Birthday!! I absolutely love your "reverse birthday" tradition. That's so fun. I'm sure it creates such a great day in your office and great connection with your coworkers. Thanks for sharing this idea 😀
Alene, Moderator
