No one really understands
I feel that every time I try to tell my family how I feel they truly don’t understand. The fatigue, forgetfulness in things that don’t make sense .. how do I forget where I spent money but I can remember I need ping pong balls ??? I don’t understand it either . I went to the beach yesterday . I feel sick to my stomach today . I wonder if it’s because of my Zeposia I take. I may had got to much sun. I really didn’t get that hot. I body is feeling tired. My legs are weak all the time. Is it possible to be having a flare ups all the time? I was diagnosed with in November so I’m pretty new to this. I was have memory issues and body aches. What do you do for MS hugs?? I have them all the time? I just rub my back wear my ribs are and that helps but it’s all the time. I tell the doctor and the response I get get is… “ it’s due to your MS and he says there is nothing you can do about it “ Is that true ! How do y’all cope with it? Helpful suggestions please!
Hi
these are great questions and I am hoping our community members will chime in here with their experiences. I am sending over a bunch of articles that I hope can help you. This article focuses on what we wish other people understood: https://multiplesclerosis.net/living-with-ms/things-wish-people-knew-ms-related-fatigue. This article will talk about leg weakness: https://multiplesclerosis.net/living-with-ms/leg-weakness. This will hopefully help with your MS hug: https://multiplesclerosis.net/symptoms/ms-hug, and in this forum you will hear of how some of our members have been able to cope: https://multiplesclerosis.net/forums/how-do-you-cope-with-the-emotional-symptoms. We are here for you, reach out at anytime. Jill (Team Member)
