Doubt and Suspicion Are PainfulSo many times in the community, our members express anger and dismay when loved ones or friends do not understand how this disease affects their bodies. Feeling accused of what...Reactions0reactionsComments10 comments
Don’t Let Heat Beat YouThe recent escalation of temperatures in my home state made me immediately think of the dog days of summer even though it was only May. If there were kryptonite capable of...Reactions0reactionsComments13 comments
HSCT Part 3: Planning for Caregiving and Health ConsiderationsThe next step after planning for treatment location and fundraising is, who will/can go with you? Questions that you need to ask yourself are: can this person handle the tough or...Reactions0reactionsComments2 comments
All Aboard the Apology TourConstantly canceling plans, forgetting important moments, seeming like I’m not paying attention, spilling things, knocking objects over, being moody because of pain, etc. From the early days of my very...Reactions0reactionsComments41 comments
MS Is a Pain in the…Every day when I wake up I am reminded that I am living with multiple sclerosis. The pain that I feel when I open my eyes is not the best...Reactions0reactionsComments83 comments
HSCT Part 2: Planning for Treatment Location and FundraisingI was mentally spent after I’d made the decision to go for HSCT, but when I was faced with the planning stage, I felt so overwhelmed it was like a...Reactions0reactionsComments4 comments
Dealing With Who I WasYesterday, while at a routine eye doctor appointment, while waiting for my eyes to dilate, I had a chunk of time to make small talk with my doctor. He knew...Reactions0reactionsComments19 comments
Are Mushrooms Magic for MS Patients?Anyone who is health-conscious is typically aware of whether certain foods are heart-healthy. Are they nutritious? Low in fat? Low in salt? Those with MS, or caregivers who often shop...Reactions0reactionsComments5 comments
MS in My 20s Part 3: A Broken BodyEmotionally speaking, multiple sclerosis (MS) made me experience many feelings throughout my 20s. Fear, confusion, anxiety, anger, loneliness, and among many other things, I felt betrayed. Betrayed by my own...Reactions0reactionsComments16 comments
The Joy Nestled Beside MeMy parents' visits begin with a "Hi Di!" and a kiss and then we delve into chatter about this and that, and my sisters are pretty much the same. My...Reactions0reactionsComments19 comments
Switching DMTs: A Sometimes Necessary HasslePreviously, I wrote about switching to a new DMT after years of being on Gilenya. Due to low lymphocyte counts, I was directed to take my Gilenya every other day...Reactions0reactionsComments4 comments
Coming to Terms With DisabilityRecently, I had a day where, for various reasons, I had to explain that I am technically disabled to several people. Each time I did so, I realized that my...Reactions0reactionsComments173 comments
Let’s Do It – Chill, Relax, and Yoga or Tai Chi With MS!Oh yeah, sure, yoga and Tai Chi my MS away. How about taking part in a triathlon to reset my immune system to its original manufacturer settings?! Well, it doesn’t...Reactions0reactionsComments19 comments
What? Another New Normal? Long-Haul COVID-19 in People With MSWhile the COVID-19 pandemic continues to linger on the heels of emerging variants, improvements in testing, treatments, and preventive measures have mitigated some public health concerns. Survivability odds are better...Reactions0reactionsComments9 comments
How Does MSAA Help the MS Community?Occasionally, we all need a helping hand. That’s where the Multiple Sclerosis Association of America (MSAA) comes in! MSAA improves lives today for the MS community through our free programs...Reactions0reactionsComments2 comments
World MS Day: A Look at the History of Multiple SclerosisFor World MS Day 2022, we're taking a look at the history of multiple sclerosis (MS). Read on to learn the answers to these questions and more: When was the...Reactions0reactionsComments2 comments
Community Shares: The Painful Reality of ShinglesWe asked our community of patient leaders to share about their shingles experiences. What topped the list of challenges when dealing with a shingles infection? PAIN! It’s no surprise that...Reactions0reactionsComments0 comments
My Friend: The Stretch StrapThe effects of multiple sclerosis (MS) can lead to a change in physical activity and abilities. This could be both positive and negative for our well-being. Some changes can actually...Reactions0reactionsComments8 comments
Am I a Warrior?I have recently begun to question the description of those living with multiple sclerosis as warriors. This is not a new discussion in the community. It is a new discussion...Reactions0reactionsComments3 comments
I Thought the Medicine Was Supposed to HelpYou started experiencing some weird issues. Maybe your vision was blurry, or legs were weak, or your arms were numb. Perhaps you had some burning pain or some really strange...Reactions0reactionsComments17 comments