Curating Hope With Monday MorningsMonday, the day people throughout the world dread. The beginning of many people’s work week, and often times, it is the end of their weekend and free time. Many folks...Reactions0reactionsComments0 comments
My New Life-Long Goal is to be Boring“What did you do over the weekend?” someone would ask me. In the past, I remember answering that question by saying that I saw a new movie, went out for...Reactions0reactionsComments36 comments
Falling Down: My Life With MS“Wow, are you OK? That looked like a bad one!” were the first words I heard this morning. Uttered by my roommate, who, from across the room, witnessed me fall and...Reactions0reactionsComments5 comments
How MS Patients Lost Their Patience, Got Mouthy, and the FDA ListenedIn the old days of multiple sclerosis care — say, circa 1990 — the medical research community and a passive MS patient population were united in their hopes that they...Reactions0reactionsComments0 comments
Baby FeverLet’s talk pregnancy with MS. I have planned since my son was born to give him a baby brother or sister if my health would allow it. But, as we...Reactions0reactionsComments2 comments
Might Your MS Medications Be Causing Sleep Problems?Research shows that sleep issues are very common in people living with multiple sclerosis (MS). Sleep issues can be caused by MS symptoms themselves, as well as the medicines used...Reactions0reactionsComments0 comments
Praying, Hoping, Waiting: MRI AnxietyEach time I go in for an MRI, I leave a nervous wreck awaiting the results. In cancer patients, they refer to the the anxiety before, during, and after medical...Reactions0reactionsComments7 comments
Buried Beneath MS: I’m Still MeMultiple Sclerosis (MS) most often affects people in ways that are not easily visible to others. You can’t see our fatigue, you can’t see our poor vision, and you can’t...Reactions0reactionsComments20 comments
It's That Time of the Year: Staying Cool With MSFor many of us, that dreaded time of the year is nearly upon us. The season when temperatures begin to rise and make life a living hell for many with Multiple...Reactions0reactionsComments28 comments
Just Trying to Get Through the DayWhen someone asks how you are, what do you say? Fine, thanks.Still sucking air.I’m swingin’! Does that question drive you batty? Do you see it as a welcome opening to...Reactions0reactionsComments12 comments
Why We Need to Go Outside Every Day If We Have MSI recently ran across a discussion in a forum on the subject of local workshops for forest bathing. (Yes, this is the kind of thing you encounter living in the...Reactions0reactionsComments7 comments
The "Can I Just...?" PhenomenonThere are times when MS is ‘easier’ to deal with. Times when it's not so blatantly ‘there’. Those particular moments are the times when I can just ‘be’. That's when...Reactions0reactionsComments26 comments
Gaining Weight With MSEvery so often, I’ll glance at myself in the mirror and think, “Wow, what happened?” After two decades of battling an incurable illness that plagues me with mobility issues and...Reactions0reactionsComments8 comments
Your Shortcomings Can Be Your SuperpowersWarning: This may be a trigger post for some. Negativity. Why it is so popular, I will never understand. I used to be a negative Nancy myself, so I do...Reactions0reactionsComments14 comments
What If It's Not All MS?I was diagnosed with Multiple Sclerosis (MS) in August of 2010 at the age of 20. I have been told by more than one neurologist that I have a pretty...Reactions0reactionsComments19 comments
Easy Assembly: The Life of My Hands After MSIn 2012 I had a major relapse that sent me to the hospital in excruciating pain that a shot of Dilaudid (Hydromorphone) barely took the edge off. I remember my...Reactions0reactionsComments0 comments
FES As a Way to Improve Mobility of People with MSFoot drop is when disruption to the nerve pathways between the legs and brain means that the front of the foot cannot be lifted to the correct angle when walking...Reactions0reactionsComments3 comments
An Uncomfortable Truth: No $ In CuresIn a development more shocking than the capture of a live Bigfoot, a recent Goldman Sachs research report (click here and here) states in black-and-white what many have long suspected:...Reactions0reactionsComments5 comments
Struggling To Be PerfectAs he drove the car, I stared out the window from the passenger seat. Daydreaming. Watching my life pass me by. Reflecting on everything I had voluntarily and involuntarily given...Reactions0reactionsComments43 comments
The Emotional Roller Coaster of an MS Diagnosis, Pt 2In Part 1, I shared how the news of some recent friends' diagnoses (or suspected diagnoses) of MS have, in some ways, triggered memories of my own emotional roller coaster...Reactions0reactionsComments2 comments