Reflections on What I've Gained Since MSI wrote an article about what MS takes away from life that discussed what the disease has taken away from my life: my independence, fine and gross motor skills, and...Reactions0reactionsComments9 comments
Sometimes, I Still Don't Believe It AllAs of this writing, I’ve been diagnosed with multiple sclerosis for over 23 years. I am 45 years old and have been disabled for the last 10 years because of...Reactions0reactionsComments15 comments
Painting the Downtown Beautiful Despite MSDan and I literally left our mark on Mt. Pleasant one Saturday morning in the middle of June. In fact, I believe we left the city even more beautiful than...Reactions0reactionsComments7 comments
What Not to Say to ME With MS, and Why I Sometimes Feel Like a FraudI know we have an invisible disease, but if there is anything that bothers me, it is somebody commenting on my symptoms. You can’t even see my symptoms! What are...Reactions0reactionsComments55 comments
MS: The Disease of PatienceMultiple sclerosis is a disease that revolves around patience. There are many aspects of living with MS that force you to slow down, whether you like it or not. It’s...Reactions0reactionsComments13 comments
What Causes My Cog Fog and How I Manage ItFolks, today as of my writing this is the kind that leaves me gasping and reeling. It’s not the first day I’ve had like this, and it won’t be the...Reactions0reactionsComments46 comments
Prompted To Reflect On My Own DisabilityI recently happened upon a book about a disabled individual. It was an interesting read. I am a reflective person, and reading the book prompted me to think of, well...Reactions0reactionsComments5 comments
MS Risk and the Herpes Virus: Is There a Link?Doctors and researchers still do not know what causes multiple sclerosis (MS). Some factors imply that an infectious agent, like a virus, may have a role in triggering MS. These...Reactions0reactionsComments0 comments
Navigating the Summer with Heat IntoleranceThe arrival of summer always brings along a sense of apprehension for me. I’m a Jersey girl – born and raised. So for the past 43 years I have been...Reactions0reactionsComments10 comments
Living Life as a "Manly Man" with MSYes, you have heard it from me, my “Manly Man Life” is now a “I forgot what a Manly Man would do.” I have mentioned in other articles how my...Reactions0reactionsComments5 comments
Side Effects: Choose Your Own Adventure!When treating multiple sclerosis (MS), whether it’s the actual disease itself with DMTs (disease-modifying therapies), or symptoms with prescription medication, you’ll probably run into this problem. Every available treatment option...Reactions0reactionsComments15 comments
Observation SkillsI was outside on my deck with my not quite 2-year-old granddaughter. We were having a pleasant conversation, as much as you can have with a toddler, when she paused...Reactions0reactionsComments2 comments
Fighting Back Against Ageism in the MS CommunityOver the last few years, I’ve been outspoken about the lack of inclusion for people aged 60 and over within the MS community. Unfortunately, we’re a group that sometimes lacks...Reactions0reactionsComments35 comments
My MS 'Next': Considering Home and 'Re'-Homing CareI've been grappling with thoughts of my MS 'next.' Who knew that a 'pivot' could induce such major changes? I didn't. It's time to really evaluate what specific care I...Reactions0reactionsComments5 comments
Supporting My Support Partner: Part 2Anita talks about both managing her own MS and caring for her support partner in a time of need. Read the first part of her story. The tough times called...Reactions0reactionsComments3 comments
Sharing One Of My 'In Spite Of MS' ExperiencesI did a thing, and it was awesome! I was unsure initially but encouraged to go for it, so I did. It was a success. I couldn't ignore the twinge...Reactions0reactionsComments14 comments
If I Could Get Better, I Would“Have you tried this diet? Maybe you’d be better if you worked out more. Have you tried using more weed? I heard mushrooms are helpful, can you try that? I...Reactions0reactionsComments7 comments
Caregivers and BurnoutCaregiver: what’s the first thing that comes to mind when you see this word? This may vary depending on whether you are the caregiver of someone diagnosed with multiple sclerosis...Reactions0reactionsComments0 comments
You’re Invited: Girls Night in the Hot Tub (with a Heat Sensitivity)Imagine getting an invitation to a girls' night out with your closest friends, where you all planned to catch up on life, have some snacks, and unwind in a hot...Reactions0reactionsComments29 comments
Community Spotlight: First Descents and Its Programs for People With MSWe sat down to talk with Kristin McMaster of First Descents, a nonprofit that provides free outdoor adventures for young adults (ages 18 to 45) living with health conditions such...Reactions0reactionsComments0 comments