Angry I could've had help 8 years ago...My story is very long so I'm going to try to keep it as simple as possible. I'm in so much pain that I begged a neurologist to see me...reactions4repliesMRIsUndiagnosed/Seeking DiagnosisSymptoms
Research This!...Everyone has a spot in research for multiple sclerosis and I want to encourage you to find yours. It wasn’t so long ago that I was diagnosed with MS, and...reactions2comments
Ocrevus and sleeping problems...Hi all I started ocrevus 3 weeks ago. I’ve completed my second infusion and ever since my first I am having a horrible trouble falling asleep/ staying asleep. Has this...reactions4replies
Building Your Support System for Life With MS...When I first heard the words, “You have MS,” it was just six weeks after my mom passed from cancer. How was I about to enter the greatest challenge in...reactions7comments
#CoolDownMS...When I get overheated my body sends me into Dystonic Storms which look like I'm having a seizure but I'm not it's just all my muscles severely spasming on me...reactions1replySymptomsSide EffectsWeather
#CoolDownMS...When I get overheated, I experience everything I experience when I have an exacerbation. I loose my equilibrium, right hand cannot grip, loose the ability to focus(double vision), and I...reactions1reply
Florida Heat...High heat temperatures in Florida impacts my MS. My favorite hobby is gardening. When I go outside, I feel lightheaded and groggy; weakness ensues. Even if I come back in...reactions3replies
Jane...I'm Robins mum, he's 41yrs old, he came home June 2020, he knew he was ill, neither could work out with what, January 2022 confirmed Ms, Ms has affected his...reactions1reply
#cooldownms...I finally got to go to two baseball games. Living in the high desert of Alburquerque New Mexico, it was a heroic effort for my husband to pull me out...reactions3replies
#CoolDownMS...#CoolDownMS Heat causes extreme redness around my eyes and eye pain. Sunglasses and visors do not help for it is the increased vasodilation and increased temp causing the issue. I...reactions5replies
#CoolDownMS...Each heat day is a new challenge. Some days my hands swell or my feet. Sometimes I just want to sleep. Heat intolerance ruins my daily activities...reactions22replies
#CoolDownMS...The heat and humidity can exacerbate my menopause and cause great discomfort. The discomfort will climax in the thumb and index fingers on my hands going numb. Can't wait for...reactionsrepliesWeather
#CoolDownMS...I love gardening but i can only be outside for 20 min at a time & I have to come back in and cool down. I get weak & dizzy...reactionsreplies
#CoolDownMS...I cycle with MS and currently use a towel with ice in it wrapped around my neck to keep my core temperature down. Riding in the abnormally high heats in...reactions2replies
#cooldownms ...I'm 38 turning 39 next week got diagnosed in 2021. Wheelchair bound. Very weak leg muscles, struggling with the heat but surviving....reactions6repliesDiagnosis
brain fog confusion depression memory issues...looking for a drug to help with brain issues...reactionsrepliesTreatmentSymptoms
#cooldownms...I was diagnosed with RRMS when I was 23. Back then, the heat would wear me out but I could still manage for a while before having to go inside...reactionsrepliesAssistive Devices
#cooldownMS...Every time I go outside to go to the doctor. The heat makes me sluggish and doesn’t want to go to the doctors. When I get in my Uber ride...reactions1reply
Reclaiming Control: The Importance of Self-Discipline in My Life With MS...I’ve always understood the value of self-discipline in life. It can be the difference between success and failure in your endeavors. However, even with my disciplined nature, managing my multiple...reactions67comments
Insurance with disability rider ...Not sure if anyone else has this issue but sure I am not the only one that has Life ins with a Disability Rider meaning if I become disabled the...reactions3repliesInsurance & Disability
