Active 6 days agoOverwhelmingly Exhausted ...I'm still in the process of seeing neurologist after neurologist after neurologist. I'm having a lot of signs and symptoms of MS and they tell me that it all points...Reactions0reactionsComments15 repliesUndiagnosed/Seeking Diagnosis
Postherpetic Neuralgia Is a Real Pain...Postherpetic neuralgia (PHN) is one of the most common complications of shingles. Nearly 20 percent of people who get shingles will develop PHN. PHN causes severe pain that can last...Reactions0reactionsComments1 comments
Do you have a particularly rough time of year for your MS?...In my life with the disease, I've noticed that I have had a tendency to have exacerbations in certain months. So while the summertime is always difficult for me because...Reactions0reactionsComments126 repliesWeatherSymptoms
Challenges of Eating Healthy...When I was diagnosed with multiple sclerosis I was inundated with information on how to manage this disease. At the heart of these suggestions was information on how to eat...Reactions0reactionsComments2 comments
The first year ended - a bit of hope...My wife started experiencing a problem with a leg, and, having MS in her family, that rang the alarm. It took a while, but eventually, she was diagnosed with RRMS...Reactions0reactionsComments2 repliesWork & EmploymentDiet & NutritionExercise
Journaling has helped my mental health...I have kept a diary since I was a little kid. I used to write about all kinds of things I did growing up. As an adult, my journal has...Reactions0reactionsComments3 repliesMental Health
ADA Access: Complaints and Compliance...I recently visited my manicurist. She shared that she hoped to hire another nail technician to help her manage her growing client base. This nail technician possessed expert training in...Reactions0reactionsComments7 comments
Drowning...One day I woke up and realized that, after what felt like a year off, I could get back to my kind of normal once more. A year where everything...Reactions0reactionsComments11 comments
Gold Nanocrystals for remyelination - update - phase 2 trial at UTSW...Hello. 5 weeks of the trial and I can report increased mobility (less footdrop,) visual acuity, and almost zero fatigue issues. Zero side effects from the drug therapy. I feel...Reactions0reactionsComments3 repliesResearch & Clinical TrialsAwarenessTreatment
6months, multiple tests ... MS like symptoms ...Has any one experience episodic partial seizures entire upper extremity leading to extreme fatigue, sense of smell changes ( loss and phantom smells of metal), episodic hearing disturbances (static) sounding...Reactions0reactionsComments1 repliesUndiagnosed/Seeking DiagnosisSymptoms
Messaging With a Friend Ushers In MS Awareness Month - And My Reality...Each Monday, I enjoy starting my day by texting good morning greetings and well wishes to friends and family. The intent is to hopefully brighten the recipient's day and begin...Reactions0reactionsComments0 comments
The Scary Aftermath of Being Sick...As I write this, I am recovering from my second bout with COVID-19. Thanks to the vaccine, this was a far different experience than my first time fighting the virus...Reactions0reactionsComments5 comments
What Is Shingles?...Shingles, also known as herpes zoster, is a common viral infection that affects about 1 out of every 3 people in the United States. Its telltale sign is a painful...Reactions0reactionsComments1 comments
When Not 'Getting It' Turns Fatal...The very day I was diagnosed with MS, I received a script for a cane. Several years later, I began using a walker in addition to - and then in lieu...Reactions0reactionsComments1 comments
MS Comic: Finish Line...The idea for this comic was submitted by one of our very own community members! Sometimes our goals, or the finish line, continue to seem farther and farther away, with...Reactions0reactionsComments2 comments
Take the Health and Media Habits Survey!...The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
MSAA to Present Second Virtual Art Tour Featuring Artists With Multiple Sclerosis...Each year, the Multiple Sclerosis Association of America’s (MSAA’s) Art Showcase celebrates beautiful artwork created by people with MS. Have you ever wondered about the artistic process of MSAA’s Art...Reactions0reactionsComments2 comments
Be More Than Happy, Sad or Angry...A while back I wrote about people needing to be able to express themselves clearly and in detail when consulting with their MS neurologist. My premise was it’s not enough to...Reactions0reactionsComments5 comments
A (Nearly) Complete List of What I Do to Get Through the Day...Have you ever stopped to think about what you do, in detail, to get yourself through the day and night? I decided to write it all out, everything I do...Reactions0reactionsComments27 comments
MS and close to retirement ...Does anyone still work but close to early retirement? I have worked 35 years at my job and will be 55 in 2 years. I feel physically it’s time to...Reactions0reactionsComments2 repliesCopingCommunity ResourcesCostInsurance & DisabilityWork & Employment
