Clear MRI
My last 2 MRI's (my last one was in 2022) were clean as in no lesions, just some grey matter but no lesions at all. I've had 3 spinal taps since 2015 (all positive) and the gamut of MS symptoms (that are progressing). I can't remember if the MS center back in 2016 diagnosed me with MS due to positive spinal taps and my symptoms/history or if they saw any lesions. Has anyone else had a clean/clear MRI but have been diagnosed with MS? Dr. Google said it is possible, but rare to have MS without lesions IF you have a positive spinal tap, symptoms/history and everything else has been ruled out (in my case they went A-Z to rule everything else out). I'm just wondering if I'm THAT RARE.
Hi Kimberly
I have to ask if they looked at your spine as well? The reason I ask is there are cases of which one has zero lesions in the brain and all on the spine..
Most of mine are on my spine and few on y brain
FYI
Yes, MS can cause lesions exclusively on the spinal cord without visible brain lesions, though this is less common. While 80% of patients develop spinal lesions, roughly 20% of those with MS may have them only in the spine. These, often found in the cervical area, cause motor weakness, numbness, and mobility issues
hey Mike, I just had 3 MRI's (brain, C-spine and Thorasic) and there are zero lesions (or at least the tech who read it made a point to say No increased T2 signal intensity within the periventricular white matter and/or corpus callosum to suggest primary demyelinating disease for both the brain and C-spine but didn't use that verbiage for the thoracic. I will say my C-spine and back are super messed up and I know that can cause some of the MS symptoms but my MS symptoms have been going on for years (years before I was even diagnosed). The 3 spinal taps I've had over a 4 year period were all positive for protein. I'm wondering if MS is a root cause of back/neck issues. I've been having gait issues for a while so that may have contributed to what is now going on in my neck and back.
My body is just falling apart and I guess at this stage I should probably not even care what to name it. Earlier in my journey I wanted/needed answers and not just to be called crazy or making it up (like someone would want to make this stuff up)...now I don't think I care since I am not crazy and def going through all of it. Does it really need a name? I do call it a PITA but other than that I'm not sure I care any longer.😬
I hope life is treating you gentle these days, love all your posts with a positive end note, thanks for being you.
So sorry your dealing with all this and I'll say no one gets it unless they walk in our shoes
I just let all the advice and comments go the way of the wind not worth reacting. Hope things get better just hang in there that's all we can do along with a smile
Here is some info although I'm sure you have looked up all this stuff. Please keep me posted how you are my friend be safe and stay happy
https://www.healthline.com/health/multiple-sclerosis/back-pain
Thanks Mike, I appreciate the article and will check out. Stay well my friend.
