Has anyone had vestibular testing for dizziness or balance problems with MS?
Dizziness, balance difficulties, and unsteadiness can be challenging symptoms for people living with MS. I’ve been learning more about how vestibular function is evaluated when someone experiences ongoing dizziness or balance-related problems.
One test I came across is VNG (Videonystagmography), which uses eye-movement recordings to help evaluate the vestibular and balance system. I’m interested in hearing from others who have experienced vestibular testing as part of their evaluation.
For those living with MS:
Have you ever had VNG or another vestibular test?
Was dizziness or balance difficulty the reason your healthcare provider recommended testing?
Did the testing help your healthcare team better understand your symptoms?
What was your experience with the testing process?
I’d appreciate hearing about other people's experiences with vestibular testing and how it fit into their overall MS care.
Hi
I am so glad you reached out. While I do hope our community chimes in here with their experiences with this, I wanted to send over a bunch of forum discussions and stories about vestibular testing: https://multiplesclerosis.net/forums/the-ever-elusive-diagnosis-quest. Here is another member's experience: https://multiplesclerosis.net/living-with-ms/helpful-physical-therapy, https://multiplesclerosis.net/living-with-ms/balance-trips-falls, https://multiplesclerosis.net/forums/how-do-you-best-advocate-for-yourself, https://multiplesclerosis.net/stories/worse-than-ms and https://multiplesclerosis.net/living-with-ms/how-visual-symptoms-affect-me-maybe-you. Also, here is a forum discussion about VNG: https://multiplesclerosis.net/forums/vng-test. I know I sent over a lot of information but I am really hoping this can help you. Jill (Team Member) No, I haven't had the testing yet, but I really need to have the testing. Because balances is balances, especially after I had to have a knee replacement surgery, and I had broke my tivia, it was the worst pain. I have ever experienced in my life if anybody has to have one in the future. Oh, I would advise against it. Although after the agony for a month and a 1/2, I am a little steadier on my knee. But the pain still comes just not quite as bad I didn't think I was gonna make it through it. But through that, and after the fact I'm starting to have cognitivity problems as well as balance problems. I mean, i'm still completely clear minded, and we've and with god, good grace, I hope to remain that way. I give all the praise to him. Now that i'm still in the mind frame that I am, but I have a problem. Especially under stress, remembering a whole lot. You know, when i'm not stressed out, I. It just may take me a second to bring everything back. But I can do it completely, but under stress it, it literally. I can't take it anybody else feel that way
