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Read conversations, start a discussion, and connect with others about multiple sclerosis.

JCV positive and Tysabri

Hello lovely people, I got a call from the hospital on Friday letting me know that my last screening test for JC virus came back positive. My next appointment is...

MS Treatment Options

How are you currently managing your MS? What treatments are you using, and how are they working out for you? ***There is no one-size-fits-all when it comes to MS management...

Anyone using Kesimpta

Hi I’m interested in anyone having side effects from Kesimpta. Have just started my first dose on Friday , it’s now Sunday night and I’ve had 3 days of terrible...

Is this a relapse?

Hi, First time here. I was diagnosed with RRMS in 2007 and never had a relapse. Two months ago, I became seriously ill with the flu and, thereafter, had burning...

Trials starting for CAR-T cells for MS

https://www.nature.com/articles/d41586-024-00470-5 It's for "re-setting the immune system" - Researchers have therefore turned to CAR T cells, and specifically to those that kill B cells carrying a protein called CD19. CAR...

Gold Nanocrystal Remyelination (Clene Nanomedicine REPAIR-MS) Phase 2 Clinical Trial Update - Five months after last dose

Below is an update since my last posting on October 23 which can be found here: https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-four-months-after-last-dose So far, so good. I continue to experience some of the MS symptom...

Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update - Three months after last dose

Below is an update on my situation since my last posting on July 13. https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-end-of-treatment-finally-concluded It’s been about three months since the conclusion of the Clene Nanomedicine REPAIR MS Phase...

Walking and bowel

Hi, I am 64 and diagnosed with MS 43 years ago. I recently joined a walking group and find the exercise is stimulating my bowel. I wear incontinence pads because...

Head mri

I have rrms been diagnosed since 2010.Been having mri's for years. The last couple of years, I find myself getting so much anxiety around having a mri. Was due one...

Getting a diagnosis

I have been experiencing cramping, pins and needles and pains for quite some time however every now and again I get an influx of other symptoms that come and stop...

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