Confined by TemperaturesIf you’re affected by the heat or the cold – or both – the temperatures outside can sometimes make you feel like you’re stuck in your own house. If you...Reactions0reactionsComments15 comments
When It Comes To MS, You Can Call Me A 'Hater'To have or feel a strong aversion, incredible dislike, or extreme disdain of something can sometimes be construed as hate. Hence, the person who inhabits said feelings may be deemed...Reactions0reactionsComments11 comments
Navigating Public SpacesLiving with multiple sclerosis (MS) means embracing adaptability. Each day presents unique challenges, and as someone navigating this chronic condition, I’ve learned to adjust gracefully. My arms, the once-reliable tools...Reactions0reactionsComments20 comments
Feeling Like an InconvenienceDuring a past appointment with a neurologist, I received great news that everything was stable. Our visit was going well, and just as we were wrapping up, the doctor mentioned...Reactions0reactionsComments21 comments
Pseudobulbar AffectMany people with multiple sclerosis (MS) experience pseudobulbar affect (PBA). PBA is a neurological (nerve) condition that causes episodes of uncontrolled laughing or crying. The outbursts do not match your...Reactions0reactionsComments5 comments
Now That You Mention it, My Lack of Focus HAS Been Bothering Me!We’ve all lived with symptoms that puzzle us and we ask ourselves: is this a new MS symptom? And then there are the problems that have hung around so long...Reactions0reactionsComments16 comments
My Relationship With MSIn the past, I have been in relationships that were not good and some that were really not good. Whatever the reason, when it was time to move on, I...Reactions0reactionsComments11 comments
Moving Through a RelapseMS is different for everyone, and the same goes for relapses. After 18 years of living with MS, I am much better at identifying a relapse, but MS can be...Reactions0reactionsComments14 comments
With MS, Remember to Focus on the Needs of Others, TooMy husband, Dan, and I should be adaptive Zumba dancing at Evolution Fitness, our local fitness center, right now. The Latin-inspired dance class was supposed to give us a fun...Reactions0reactionsComments2 comments
Shattering the Myths of MSIt’s hard enough to understand multiple sclerosis (MS) when you’re the one experiencing it. It’s invisible and unpredictable, and it creates some pretty weird and unexpected symptoms. So it’s understandable...Reactions0reactionsComments9 comments
Am I Still A Musician If I Can't Play?Multiple sclerosis (MS) has affected almost every part of my body. I have brain lesions in the periventricular white matter. What symptoms they cause is not clear to me. Most...Reactions0reactionsComments37 comments
My Epiphany: What I Realized Going From RRMS to SPMSAs life keeps going, there will be plenty of ‘ah-ha!’ or ‘lightbulb’ moments. Or the sudden realization of something you missed from a past event that you now see coming...Reactions0reactionsComments6 comments
After 38 Years, Here Are 8 Things I Learned About Living with MSThis year marks 38 years since my MS diagnosis. Since then, the learning curve has been steep, from having little knowledge about the disease and no MS medications to a...Reactions0reactionsComments54 comments
With MS, I Appreciate the Convenience Of ConvenienceI’ve never been one to turn a blind eye to practices that were beneficial in helping me to efficiently care for myself and manage my life. Practicality, ease, comfort, and...Reactions0reactionsComments4 comments
Creating Your Comfort Zone at HomeLiving with multiple sclerosis (MS) can mean you experience a range of energy levels throughout your day. Its unpredictable nature can make it challenging. That’s why I find it so...Reactions0reactionsComments3 comments
Low-Energy Activities for Summer FunSummer is the season of “fun in the sun.” But what happens when multiple sclerosis (MS) makes you fear the sun? Hot summer days can trigger even more fatigue, not...Reactions0reactionsComments17 comments
Beat the Heat GiveawayThis summer's temperatures are already rising. For many with multiple sclerosis (MS), that heat means worsening symptoms like temperature regulation issues, fatigue, and mobility issues. But simply staying out of...Reactions0reactionsComments49 comments
Just ‘One of Those Days’ With MSThe weekend was fine. No strenuous activity. I wasn’t under any pressure or strife. I simply went to bed; went to bed Sunday night and slept well. Then I woke...Reactions0reactionsComments3 comments
Why I Workout – and What I Do When I Want to Do Anything ButI’ve said it before that one of the silver linings of living with MS is that I prioritize my overall health more. About 7 years ago I decided to start...Reactions0reactionsComments10 comments
Navigating the "How Are You?" Question With MSIt's a simple question: "how are you feeling?" But when you're living with MS, the answer is anything but simple. It's complicated and forever fluctuating. So how do you give...Reactions0reactionsComments25 comments