MS and Symptoms That are Hard to DescribeIf we stumble, fall, and snap a bone, we are obviously ‘broken’ and need to be fixed by our doctors and often require assistance from our family and friends. No...Reactions0reactionsComments40 comments
Not All Snowflakes are the SameSo I recently decided to make the switch from Tysabri to Lemtrada. I did not talk too much about it on my own blog because A) I just have not...Reactions0reactionsComments5 comments
Late-stage Multiple SclerosisYou may find this conversation unsettling, so please decide for yourself if you want to read on. I am discussing the worst-case scenarios for people with aggressive, progressive MS, and...Reactions0reactionsComments13 comments
Jaws: TMJ, Bruxism, Their Relation to MS – And Why We're Gonna Need a Bigger BoatIn my mid-1960s youth, a jawbreaker was a newfangled kind of gumball that was not a regular on my candy store wish list. Every Saturday afternoon, I’d walk or bike...Reactions0reactionsComments13 comments
Dealing with Guilt as a ParentThose of you that live with multiple sclerosis probably know that there is no 100% known cause of MS. However, there are some things that scientists have found have contributed...Reactions0reactionsComments2 comments
Caregiver Perspective: How MS Affects the FamilyWhen a person gets MS everyone is aware of the emotional and physical adjustments that he/she has to make. However, any type of chronic illness affects not only those who...Reactions0reactionsComments5 comments
Ocular Aura, Asymptomatic Optic Neuritis, and Multiple SclerosisLast month, a strange thing happened. I was sitting at the computer engrossed in my moderating/writing stuff, when suddenly my vision went wonky, sort of the way it does when...Reactions0reactionsComments9 comments
Building Your MS Healthcare TeamDo I need more than one healthcare provider? As far back as I can remember, I’ve had several doctors, or healthcare providers. Like most children, I had a pediatrician, although...Reactions0reactionsComments2 comments
My Slide Into Secondary Progressive Multiple SclerosisEditor's note: This article was written and published in 2015. The MS treatment landscape is constantly changing, and you can read updated information about available MS therapies here. While in...Reactions0reactionsComments24 comments
The Emotional Effects of MSHow does Multiple Sclerosis affect people’s emotions? That is such a difficult question to address because the answer is so broad. Just like MS effects everyone differently (symptomatically) it effects...Reactions0reactionsComments1 comments
Preparing for your Neurologist AppointmentEveryone gets those reminder telephone calls before their appointment about what time to get there, to bring the most recent insurance card and copay, and of course the list of...Reactions0reactionsComments0 comments
Diagnosis: Denial, Its Consequences and SolutionsThink back to the beginning of this whole ordeal, back to that whack-a-do diagnostic disease pitch your docs threw out there that caused you sudden major brain freeze: Two or...Reactions0reactionsComments0 comments
How to Embrace the Power of the Clinical Trial on International Clinical Trials Day and BeyondWhen we pick up our prescriptions from the pharmacy, most of us do not think about where these drugs come from. Yet every pill or medical intervention – from cold...Reactions0reactionsComments0 comments
Love, Interrupted: When Should We Disclose MS on Dating Sites?There has been a lot of discussion about when to disclose your MS to an employer. It’s a complicated, nerve-racking subject; the decision about when to disclose a medical condition...Reactions0reactionsComments2 comments
Every Little Thing“My advice to other disabled people would be, concentrate on things your disability doesn't prevent you doing well, and don't regret the things it interferes with. Don't be disabled in...Reactions0reactionsComments5 comments
5 Pieces of Advice for the Newly DiagnosedI’m a few years into the MS game now, and I often find myself exchanging e-mails with people who have just been diagnosed. I never hesitate to extend a helping hand...Reactions0reactionsComments8 comments
The 50 Shades of MS PainMy mom and I both live with MS, but we have had extremely different experiences with diagnosis, treatment, and symptoms. I sometimes find it hard to believe what a difference...Reactions0reactionsComments40 comments
Driving and Multiple Sclerosis; IndependenceI can remember wanting nothing more than to get my driver’s license. I studied, I went to driver’s school, I studied some more, I practiced whenever I could and I...Reactions0reactionsComments29 comments
MS Research Update 2015 Edition from MSAAKeeping track of every MS-related study, trial, drug release, and other updates - and interpreting their clinical relevance to the MS community - can sometimes be stress-inducing. Fortunately, the Multiple...Reactions0reactionsComments0 comments
Becoming the Guy in the WheelchairI've recently heard from several people who are on the verge of needing wheelchairs, saying that my Wheelchair Kamikaze videos have helped them and their friends and families see that...Reactions0reactionsComments1 comments