MS Fatigue...I want to do so much more than I am able to do because of MS fatigue. I simply give out. My saying is “I have hit my Brick wall!”...Reactions0reactionsComments2 repliesFatigue
Online support groups new York ...Does anybody have any information regarding online support groups for multiple sclerosis in the New York area or close by? Thank you...Reactions0reactionsComments1 replies
What are some resources for getting information for getting a good case worker ...Does anyone have a special non family or friend member that helps you get to your appts and help with various things ? Thanks...Reactions0reactionsComments3 replies
The emotional toll ...Sad to say that last night, after hours of my zings and zappers and spasticity going absolutely haywire... I was so exhausted and couldn't relax, I wanted sleep but couldn't...Reactions0reactionsComments3 repliesUndiagnosed/Seeking DiagnosisCopingSymptoms
Managing fatigue ...My fatigue is getting worse. I don’t know what else to do. I’ve talked to my neurologist couple times she doesn’t feel it’s related to my MS, which I don’t...Reactions0reactionsComments7 repliesDepressionSymptomsFatigue
Fatigue ...Fatigue and my legs hurt have stopped me daily. There are times when I can't hardly walk....Reactions0reactionsComments2 replies
having a relapse...Wondering whether others would do a prednisone treatment or get a covid vaccine first...Reactions0reactionsComments1 replies
Frequency urinating...I kept a log and I recently went 24 times/day (5am-10pm). My urologist says it’s bc of the nerves in my bladder telling my brain that my bladder is full...Reactions0reactionsComments11 repliesPPMS
How Speech Therapy Helped Me...Back in the spring of 2023, I told my new MS specialist that, for years, I’d been having problems voluntarily swallowing at times. This mostly occurred at night, while lying...Reactions0reactionsComments4 comments
Gold Nanocrystal Remyelination Phase 2 Clinical Trial Update - Restarted treatment...Hello. Below is an update since my last posting on July 13, 2022. https://multiplesclerosis.net/forums/gold-nanocrystal-remyelination-phase-2-clinical-trial-update-end-of-treatment-finally-concluded Just started taking the Clene Nanomedicine CNM-Au8 therapy again as part of a new Expanded Access...Reactions0reactionsComments1 repliesTreatmentResearch & Clinical Trials
COVID and MS...My partner has COVID and multiple sclerosis. Currently they are exhausted and continuously crying saying that their skin feels like it is covered in acid. They are afraid that this...Reactions0reactionsComments3 replies
Life Changed When I Was 12 Years Old...I was a 12-year-old getting ready for bed when I laid down, and suddenly, I felt different, just not right. I screamed and cried as I did not know what...Reactions0reactionsComments8 comments
Walking...I use to walk the track at the schools. The fresh air and the sun always helped me so much. I found it cleared my head along with the pain...Reactions0reactionsComments5 repliesMental HealthPainTips & Advice
Stem cell therapy ...Has anyone tried stem call injections and had any success? Any feedback is appreciated Just curious to see if walking pain associated with MS can be lessened. Thanks all Bill...Reactions0reactionsComments1 repliesCopingAssistive Devices
If I could I would ...I have no idea how to help myself any longer....Reactions0reactionsComments2 repliesFatigueDepressionPain
Passing out and don’t never know when it’s gonna happen ...Fainting...Reactions0reactionsComments1 repliesDiagnosisAwareness
Diet and Nutrition...What type of diet or nutrition do you follow to support your MS and overall health? Are there any specific foods that you’ve noticed seem to trigger your symptoms?...Reactions0reactionsComments4 replies
vision symptoms ?...hello everyone, I havent yet been diagnosed with MS, Im seeing my doctor re muscle twitches all over my body all day everyday, muscles aches, fatigue I have had for...Reactions0reactionsComments5 repliesSymptomsUndiagnosed/Seeking Diagnosis
5 Ways to Improve Your Health While Sitting...I've seen buzz in the news about sitting being the “new smoking” in terms of habits that negatively impact your health. But what happens when standing or physical activity isn’t...Reactions0reactionsComments16 comments
The smallest things matter so much......Tonight, I stayed out of the way. I know that my mobility is an issue, and my tremor is a hindrance. But after dinner, I went to go make myself...Reactions0reactionsComments12 replies
