April and the Wahl's Protocol...I eat to conquer my PPMS symptoms. That’s about all I do, and go to the bathroom when I’m not eating, or reading, or exercising or sleeping. I’m working through...Reactions0reactionsComments1 replies
27 years living with the MonSter and what I have learned ...I have had the MonSter for so long and it’s not going anywhere. I was diagnosed as 24 and there were only the ABC drugs available. Avonex, Betaseron, and Capaxone...Reactions0reactionsComments4 repliesCoping
Mistaken abuse of using a permanent handicap placard....Oftentimes, people will pass just judgement against a person with MS because they are young, or because their not in a wheelchair.This has happened to me a few times during...Reactions0reactionsComments2 replies
MS meds can affect your sight...I was on Amantadine for MS fatique and it destroyed my corneas which required bilateral cornea transplants. There was no warning of Amantadine possibly harming the corneas. Surgery did not...Reactions0reactionsComments4 replies
Loss of feeling in my ex's arm and cramped up fingers...My ex was diagnosed with MS aprox 10 yrs ago he has blind spots followed by extreme headache plus numbness in right arm now followed by cramping of his hand...Reactions0reactionsComments1 replies
'I'm going to have to ask you to leave"...I was in a small store I had been to several times before. I was by myself without my daughters, who had usually joined me. I was looking through the...Reactions0reactionsComments10 replies
Question about eye issues...Good morning, I was going over symptoms with my husband last night and one caught my eye (pun intended) :) Last year sometime for a week or so when I...Reactions0reactionsComments4 repliesSymptoms
I have a question about Late Onset MS...For the last 2 1/2 years now, I have been going in circles seeing 4 neurologists who haven't helped me. Now I know that after all the schooling they go...Reactions0reactionsComments15 repliesDiagnosisMRIs
Trigeminal neurolgia ...Just recently my trigeminal neuralgia was acting up. The barometric pressure dropped a lot, I was wondering if any body else had it happened to them....Reactions0reactionsComments2 repliesWeatherPain
Just ‘One of Those Days’ With MS...The weekend was fine. No strenuous activity. I wasn’t under any pressure or strife. I simply went to bed; went to bed Sunday night and slept well. Then I woke...Reactions0reactionsComments3 comments
The journey for a diagnosis continues!...I just got the preliminary report from the radiologist on my recent MRI (brain with contrast), and great news! I don't have a brain tumor and have never had a...Reactions0reactionsComments1 repliesDiagnosisTips & AdviceUndiagnosed/Seeking Diagnosis
How do I get my Dr to take me seriously?...Hello all, first of all I have been trying to start this thread twice and it doesn't seem to be posting so if you see this more than once I...Reactions0reactionsComments2 repliesUndiagnosed/Seeking Diagnosis
Why I Workout – and What I Do When I Want to Do Anything But...I’ve said it before that one of the silver linings of living with MS is that I prioritize my overall health more. About 7 years ago I decided to start...Reactions0reactionsComments10 comments
Liver Enzymes ...Has anyone had problems with their liver enzymes being in high range? I know the DMT'S can affect the liver. I have had to come of my medication due to...Reactions0reactionsComments1 replies
Can 'flare ups' only last a few hours?...Hello! I'm currently in a period of collecting a list of symptoms. Thankfully haven't had very many episodes this year yet, other than a numb fingertip, and numbness of the...Reactions0reactionsComments3 repliesUndiagnosed/Seeking DiagnosisSymptoms
Navigating the "How Are You?" Question With MS...It's a simple question: "how are you feeling?" But when you're living with MS, the answer is anything but simple. It's complicated and forever fluctuating. So how do you give...Reactions0reactionsComments25 comments
Ampyra...I've read the early posts on Ampyra. My neuro started me on it two weeks ago. So far, no change. It apparently takes 6 weeks to have an effect. Meanwhile...Reactions0reactionsComments0 repliesTreatment
Working Out The MS...I was 22 when I got my RRMS diagnosis and faced a number of new health issues. I found it hard to continue my active life. Running and jogging had...Reactions0reactionsComments2 comments
A Day Without the Shadow of MS: A Dream of Peace and Liberation...For many, a new day brings the promise of possibility, of opportunities waiting to be seized. But for those of us navigating the labyrinth of multiple sclerosis (MS), each dawn...Reactions0reactionsComments1 comments
I'm kicking myself today ...Both literally and physically (but unintentionally with the physical). I've been journaling hard for the past couple of months as I count down to my MRI in two days. And...Reactions0reactionsComments6 repliesCopingDiagnosisSymptoms
