Diagnosed 2 days before wedding sitting next to fiancé....We are celebrating 30 years this year. Last week, hubby fit me for spinal brace bc my curved stance, discovering MS attracts other osis’. Remembered reading “Deenie” in middle school...Reactions0reactionsComments1 replies
Life With MS...I was diagnosed with MS 10 years ago. I was in construction 30 years when I could no longer do it mentally or physically. Mentally was the worst. My last...Reactions0reactionsComments7 replies
Do you tell people you may have MS...Hi, I am new here! Basically, I was wondering whether or not you would tell your family that you may have MS? Other than my husband, I haven't told anyone...Reactions0reactionsComments14 repliesUndiagnosed/Seeking DiagnosisFriends & Family
Numbness, tightness and now burning sensation...Hello all I recently had an MS flare up after going 15 years without one and have gotten back on meds (Glatopa) about 3 weeks ago after having been off...Reactions0reactionsComments6 repliesSymptomsDiagnosis
Thinking Back on When I Shared My Use With Assistive Devices...There is this new trend of Reels (short video clips) and Tik Toks. Shout out to Brooke who makes the most entertaining and resonating MS Tik Toks for our viewing...Reactions0reactionsComments2 comments
Mary Pettigrew...Mary Pettigrew is a freelance writer/blogger and patient advocate from Dallas, Texas. Her writing style is somewhat eclectic in nature. She enjoys writing poetry, prose, essay, narrative interviews, journalism, and...
Your Story of My MS...The first person I told about my MS was minutes after diagnosis. I'd promised a friend to give her a call after the doctor's appointment. As I breathlessly walked through...Reactions0reactionsComments3 comments
Help...I have not been diagnosed yet . They have done 4 MRI. My problem is severe balance. This has been going on for 6 months . Extreme fatigue numbness in...Reactions0reactionsComments2 repliesAwarenessUndiagnosed/Seeking DiagnosisDiagnosis
Undiagnosed and unsure...I had an episode of severe numbness and tingling in my feet and lost sensation in my buttocks, nearly 20 years ago they found a lesion on my spine and...Reactions0reactionsComments1 repliesDiagnosisSymptomsUndiagnosed/Seeking Diagnosis
MS and the work place: What adjustments have you made?...MS can impact our lives in so many ways, sadly, that often includes our ability to work. In my case, my symptoms eventually forced me to leave the workplace and...Reactions0reactionsComments4 repliesWork & EmploymentTips & Advice
Covid, hypothalamus, lesions...I just typed all this in a forum so I’m just copying and pasting… My husband was diagnosed in 2013. He’s never really had relapses - just a slow decline...Reactions0reactionsComments2 repliesSymptoms
DMT and my healthcare career?...I am a respiratory therapist and a sleep specialist. I no longer do bedside therapy at a hospital, I currently work in a clinic and do home sleep studies or...Reactions0reactionsComments6 repliesWork & EmploymentTreatment
Can You Die from Multiple Sclerosis?...Content Note: This article describes death and suicide. If you or a loved one are struggling, consider reading our mental health resources page. If you have been diagnosed with multiple...Reactions0reactionsComments2 comments
Undiagnosed but getting assessed ...I've 22F been feeling worse over the last 2 years and just chalking it up to my depression. Last year I decided to get worked up for autoimmune and nothing...Reactions0reactionsComments3 repliesSymptomsDiagnosisUndiagnosed/Seeking Diagnosis
What's With My MS and Recurring UTIs?...“This is the end, my beautiful friend, the end.” Every single time I have used the bathroom over these past seven days, I hear the Doors' Jim Morrison melodically sing...Reactions0reactionsComments2 comments
A New Year Living With the Challenges of MS and Setting Goals...I know, can you believe it’s that time to set new goals for a new year? Okay, you're thinking, "it's tough enough to just get by each day living with...Reactions0reactionsComments10 comments
Hey! Need a little pick me up? A few minutes of distraction? ...Call me crazy? Or eccentric, but try these as a way to feel you control the here and now, focused on you. Please comment if you've tried one, myself or...Reactions0reactionsComments3 replies
Lyrica side effects?...Hi everyone, I was diagnosed with MS a few weeks ago. Left arm and hand numb and thumb and index finger felt paralysed. I got a steroid infusion that didn't...Reactions0reactionsComments2 repliesNewly DiagnosedTreatment
Sharing the truth about life with MS...*This survey is now closed. Thank you to everyone that participated.* It's been said that you can't understand MS if you don't have MS. While that is true, we can...Reactions0reactionsComments3 replies
Pondering My Age and My MS Treatment...As I hobbled into the infusion center for my monthly Tysabri infusion, I got all the normal greetings, jokes, questions about life, etc. When I sat down in my giant...Reactions0reactionsComments12 comments
