Bullet-time Diagnosis...Did time slow down for anyone else when your doctor said you have MS? My doctor's voice sounded like someone slowed down the record! That was one bullet I couldn't...Reactions0reactionsComments2 repliesCopingDiagnosisAwareness
How I Know if I'm Having a Relapse...Many people living with multiple sclerosis (MS) have asked themselves at one point or another, "Am I having a relapse?" Jenny has experienced a number of relapses throughout her aggressive...Reactions0reactionsComments4 comments
I Still Have MS...I had finally gotten into graduate school. I'd been a divorced, single mom for 7 years. I struggled. I worked, a lot. My ex-husband rarely saw our kids and even...Reactions0reactionsComments0 comments
Dynamically Disabled...While perusing social media recently, I came across another individual who suffered from a chronic illness. Like me, she is disabled. Also, like me, she can still sometimes walk and...Reactions0reactionsComments24 comments
Suspected MS...Hey. My names Jade. I've been going to my GP on and off for a couple of years now with varying things. Lethargy, dizziness foot pain and back pain and...Reactions0reactionsComments3 repliesUndiagnosed/Seeking Diagnosis
starting new MS drug...I was diagnosed 11 yrs. ago with MS and have been on copaxone. My doctor would like me to try Zeposia. I am nervous about using it since it has...Reactions0reactionsComments3 repliesPPMSSide EffectsTreatmentTips & Advice
Live Music and MS...As a 30-year fan of the Dave Matthews Band, I was ecstatic when I heard that they were going to be playing back-to-back shows again at Madison Square Garden. Even...Reactions0reactionsComments2 comments
The Sand Trap...I had just moved to Florida and was working in a physical therapy clinic when I met Renie Calkin. This was only a few months ago. My move had been...Reactions0reactionsComments4 comments
Finish This Story...For the last 30 years, this dis-ease changed my life. I've somehow managed not to be angry at my situation. Several years ago, I came across a quote by Epictetus...Reactions0reactionsComments1 comments
How Active Logging of MS Symptoms Changed My Life...In 2015, my life turned upside down. After nine years of various signs and symptoms (body numbness, severe headaches, and sudden energy drains) here and there, multiple doctor appointments, MRIs...Reactions0reactionsComments8 comments
It's getting harder instead of easier.......I'm Rose. I was diagnosed with M.S. back in 1990, when there weren't a lot of treatment options. My diagnosing neuro had me on a constant low-dose steroid, plus a...Reactions0reactionsComments3 repliesCopingFriends & FamilyTips & Advice
Just diagnosed ...I’m unsure what to do because I found out 10 days ago that I have RRMS (by MRI and lumbar puncture) but have apparently had MS for some years. My...Reactions0reactionsComments3 repliesNewly Diagnosed
Multiple diseases...Would like to hear from someone else that is trying to navigate through treatment decisions for each. I have Multiple Sclerosis of course, but also have a very rare tumor...Reactions0reactionsComments3 repliesTreatment
Perimenopause or MS?...Was it a heat flash? Was it a chinook increasing the temperature overnight? Was it overnight MS bladder? I am too young for perimenopause is the message I am receiving...Reactions0reactionsComments1 repliesDepressionIntimacy & RelationshipsTips & Advice
How important is routine to you?...One thing I've noticed over my years of living with MS is that my need for routine has become very important to me. Having the same routine for a week...Reactions0reactionsComments12 repliesFatigueDepressionCoping
Doors Opening...My MS journey, and I witness and see for many, is a narrative about doors closing. Having to leave my job because I wasn't able to cope, readjusting how to...Reactions0reactionsComments0 comments
The Reality of Multiple Sclerosis...The reality of multiple sclerosis Or, MS and reality. It’s not a fun combination. People only see a slice of what we face daily. They see the mobility and the...Reactions0reactionsComments0 comments
Waiting for a diagnosis...Hello everyone. I'm new here, and actually haven't been officially diagnosed. I've had 2 MRIs which narrowed my issue down to 2 possibilities, either MS or a tumor. My question...Reactions0reactionsComments5 repliesUndiagnosed/Seeking Diagnosis
Fighting Strong With What Gives You Strength...Hearing the words “you have multiple sclerosis” is nothing that a person wants to hear. When you are informed of that diagnosis, it’s comforting that what symptoms you are having...Reactions0reactionsComments0 comments
Medication - Copaxone versus Plegridy...Hello I was diagnosed with Clinically Isolated Syndrome back in 2007 and was quickly put on Rebif for 10 years. I did great on Rebif for the 10 years however...Reactions0reactionsComments9 replies