Dmt’s
I was diagnosed June of 2023 and started on Tysabri!I got my new MRI recently,and it showed new lesions!My Nuerologist wants me in,stat,in the morning to discuss other options for treatment!Has anyone taking Tysabri that has had to switch from Tysabri to something else?Some feedback would be greatly appreciated!Thanks,Jerry
I am sorry that Tysabri doesn't appear to be working well for you,
. I do like that your neurologist is on top of things and isn't wanting to wait around. That's good. Although, I know the prospect of trying a new medication can be frustrating.
I don't want to discourage you, but I know many of our members have had to try more than one DMT before finding the right fit (including switching from Tysabri to another treatment). Here is one topic on the piece of switching treatments that I thought you might find interesting -- https://multiplesclerosis.net/living-with-ms/added-risk-another-treatment. And here's a brief piece by a community member about switching meds -- https://multiplesclerosis.net/stories/treatment-experience. Has your doctor mentioned what he/she thinks you should try next?
Please know you are not alone in this and this is not an unusual situation at all.
I will be interested to see what you try next and please keep us posted, if you feel comfortable doing so. Again, I love how proactive your neurologist is and I hope the second time is the charm for you and you see an improvement in your lesion activity.
Best, Erin, MultipleSclerosis.net Team Member.Thanks Erin,I went and saw her,and she gave me a couple of options to choose from!It went down to Kesimpta or Ocrevus that sounded the best to me!Ocrevusis the one that has no issues with switching over from another DMT to Ocrevus!So,we decided on Ocrevus,as our next DMT!Soon after I got home this morning,I already got the call that my insurance accepted the switch,and if everything goes as planned,I will get my first Ocrevus infusion right about the time I was scheduled to have my Tysabri infusion,so yes,I am very fortunate to have a great Nuerologist!I am very thankful for your concern,as well!Thank you very much,Jerry
, great! I am glad your insurance was so quick to approve the treatment (that's not always the case). I know many of our members have had good luck with Ocrevus and I hope that's the case for you.
Feel free to reach out to us if you experience any side effects or questions about Ocrevus; we're happy to help in any way we can!
Best, Erin, MultipleSclerosis.net Team Member.
Thank you so much!I will definitely be dropping in from time to time to let you know how the Ocrevus is working!I appreciate your concern!I love this forum!Again,thank you!
I've been on Tysabri for 10 years. Now I am moving on to Retuxun . Nerologist thinks it's too risky. I've had JC virus and time goes on the risk gets greater,but Tysabri wasGREAT!!!!
