Does MS Ever Get Better?Multiple sclerosis is such a mysterious disease. There is still so much that just doesn’t make sense. Reports from recent MRI scans has got me thinking. I’ve been officially living...Reactions0reactionsComments16 comments
Chronic Illness BurnoutWhen someone utters that they are “burned out,” I think people normally tend to associate this with one’s work. A quick search of the definition lists it as a person...Reactions0reactionsComments42 comments
MS Research Spotlight: UV vs. Vitamin D, Acthar Relief, Wireless Mobility, and MoreMS Research Spotlight covers key research news from the last month. Researchers have long understood that a link exists between poor sleep and MS. Whether MS is the root cause...Reactions0reactionsComments0 comments
Lessons from My First 10 Years of Life With MSI'll soon be entering my tenth year living with multiple sclerosis (MS). I was diagnosed in 2010, just after I turned 20 years old, so with the exception of about...Reactions0reactionsComments36 comments
MS Comic: Twitching Legs at NightSome people with MS can experience tremors and spasms at night as they're trying to fall asleep. These can be frustrating and disrupt sleep but when sharing a bed with...Reactions0reactionsComments0 comments
Busy In My Blue Chair Fighting SPMSThe matter at hand: I am in the secondary-progressive stage of MS (SPMS). I no longer work. I no longer drive. I'm pretty much down to a taking a couple...Reactions0reactionsComments9 comments
Fighting a Cold or Flu While Living with Multiple SclerosisI’ve been indoors for two weeks and counting, binge-watching British shows on BritBox, listening to music, and napping. A lot of napping because my fatigue is 24/7 despite any nighttime...Reactions0reactionsComments24 comments
Not My Type of MSI receive a steady stream of MS news items. Unfortunately, almost none of it applies to me. I do have MS, just not that type of MS. I am the...Reactions0reactionsComments107 comments
How Do You Feel After an Infusion?The other day, someone asked me how I usually feel after an infusion. Because that is a pretty broad question with such a dense answer, I thought I should take...Reactions0reactionsComments29 comments
The Similarities of Chronic IllnessesAs I’ve been writing about living with Multiple Sclerosis for several years now (wow, time really does fly), I’ve grown accustomed to talking to folks who don’t actually suffer from...Reactions0reactionsComments15 comments
Coming Out and MSIn the months leading up my coming out, I watched everything YouTube had to offer on the topic. Alone in my room, I would straddle the line between anxious curiosity...Reactions0reactionsComments11 comments
Disabled Needs Are Not Black and WhiteRecently, I’ve seen a few people on social media post a great meme, it’s got two images, one, the typical wheelchair from a handicap sign, and two, a person standing...Reactions0reactionsComments21 comments
Finally, Just a Common Cold: No More AnxietyGrowing up, I didn’t get sick any more or any less frequently than most of the other kids around me. When I did, there was nothing to it… just part...Reactions0reactionsComments5 comments
Just One of Those MS DaysThe house is a mess. Too tired to clean. Cell phone sitting in my lap. Half charged. Just like me. The sofa is the only place I’ve been today. The...Reactions0reactionsComments23 comments
Declaration of DependenceAs the sands of time trickle down the hourglass of my life with MS, I find myself in an extremely unpalatable situation. Now close to twenty years diagnosed (but likely...Reactions0reactionsComments43 comments
Mood SwingsMood swings with MS can come out of nowhere! The smallest inconvenience can cause a huge wave of emotions, as Brooke illustrates in her comic below. She tells the story...Reactions0reactionsComments5 comments
Caregiver Perspective: Delirium and UTI's - What's the Connection?Did you know that delirium can be a symptom of a urinary tract infection? Neither did I, but it's something I'm learning to recognize. Apparently, I'm not the only one...Reactions0reactionsComments5 comments
Some Days I'm Frustrated, But Most Days I'm OkayI find that I actually don't mind having multiple sclerosis. I mean, not to imply that I'm a fan - it was not an entry on my Christmas list or...Reactions0reactionsComments6 comments
The Gender Divide: Differences Between Men and Women With MSMultiple sclerosis (MS), like many other autoimmune conditions, is much more common in women than in men. But many men live with MS, and they tend to experience a more...Reactions0reactionsComments6 comments
What Not to Say to a Person with MSPeople have the best intentions. They want to say something uplifting or profound to affect me in a positive way. They shouldn’t. It usually falls flat. I have lots of...Reactions0reactionsComments161 comments
